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Tuberous Sclerosis

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Young woman sleeping in a hospital bed

Living with Tuberous Sclerosis

Tuberous Sclerosis (TS) is a rare genetic disorder affecting various body organs. It causes noncancerous tumors called hamartomas to grow in different organs. It leads to various symptoms and complications. People with TS face unique challenges that impact their daily lives. Living with TS involves navigating a complex medical landscape. It requires early diagnosis, exploring…

Dr. Loeb
09/02/24
female hands with skin lesions in tuberous sclerosis

Understanding Skin Lesions in Tuberous Sclerosis Complex

Skin lesions can be like secret messages from our body. And more often than not, they tell us that something is not quite right. Regarding tuberous sclerosis complexes, these skin findings are crucial in the diagnostic puzzle. But what are these “skin findings,” and why are they important in tuberous sclerosis? Imagine your skin is…

Chaitanya Bonda
17/11/23
tuberous sclerosis treatment

Managing Tuberous Sclerosis: Treatment Options

Tuberous sclerosis is a rare genetic disorder. It affects different organs in the body. It causes noncancerous tumors called hamartomas. And it can lead to various signs and complications. To effectively control tuberous sclerosis, a comprehensive therapy approach is necessary. The goal is to: Control signs. Prevent complications. Improve the person’s quality of life. Tuberous…

Chaitanya Bonda
11/07/23
Tubular Sclerosis Complex

Tubular Sclerosis Complex

Tuberous Sclerosis Complex (TSC) is a rare genetic illness. It affects many organs in the body, including the brain, heart, kidneys, and skin. TSC affects about 1 in 6,000 individuals worldwide and can occur in people of any race or ethnicity. The severity of the condition varies widely. And some people may have only mild…

Dr. Shukla
18/05/23
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