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Guide: How to Help Someone With ALS

Sandeep Dhanyamraju MD
Medically reviewed by Sandeep Dhanyamraju
Sandeep Dhanyamraju MD
Medically reviewed by Sandeep Dhanyamraju

Do you have a close friend or family member who encountered ASL? In such a situation, a very critical question arises regarding how to help them. And the answer to this is vital to know. After all, life with such a disease has many complications. But while this severe illness can be life-threatening, there are ways to help comfort your close one.

Let’s start with the fact that Amyotrophic Lateral Sclerosis (ALS) is an incredibly complex nervous system disease. It affects motor functions and muscles. That is, a person loses the ability to control movements, including speech and action problems. You can understand that the disorder is quite complex based on the symptoms. Assisting such patients is extremely important.

Caring for people with ALS requires special attention and care. First of all, it is essential to provide comfortable living conditions. It includes adapting the environment to the patient’s needs. Medical support, such as physical therapy and medication, can help maintain muscle function and manage pain. In addition, communication and psychological support are essential for those living with ALS. It is crucial to allow the patient to express their needs. So, family and friends can help create a positive emotional environment for them.

Living with ALS: The Patient Perspective

ALS patients contend with loss of mobility, speech problems, and other physical challenges. How does one cope with a progressive disease that gradually weakens the muscles and affects every aspect of life? What unique perspectives shape the lives of those living with ALS? Despite these challenges, patients living with ALS find ways to adapt and appreciate life’s simple joys.

One of the most significant aspects of living with ALS is losing control over one’s body. Simple tasks, such as eating, speaking, or even breathing, become increasingly difficult. However, technological advances provide hope and enhance the quality of life for ALS patients. Innovative solutions, including eye-tracking software and devices, help individuals communicate effectively. Such helpful things for ALS patients to maintain their independence and engage them with the world.

Support groups and online communities have also proven to be invaluable resources. It provides patients a safe space to express their thoughts, fears, and frustrations. These connections help combat the isolation that often accompanies the disease. It gives a sense of community and understanding.

a woman is resting on a couch and a wheelchair is standing next to her

Caring for ALS Patients: Family and Professional Care

Family care plays a vital role in overcoming challenges. It is especially significant for patients with ALS. Coping with such a disease is problematic not only physically. It is also difficult and moral because it constantly causes stress due to symptoms. For this reason, it is crucial to provide patients with friendly and family support.

Caring for ALS patients is a team effort, and the family plays a vital role in this process. On the one hand, it provides psychological support and caress. And on the other hand, it performs physical duties, helping with everyday needs. Modern technologies, such as electronic mobility aids, make caregiving more efficient.

But you should also remember that not only family members need to know how to help someone with ASL. It is also important to receive support and care from medical professionals. They have extraordinary experience and knowledge in diagnosing and treating ALS. They provide medical care, counseling, and rehabilitation recommendations.

Importance of professional medical care

Caring for ALS patients needs a comprehensive approach. It involves both professional medical care and the support of family members. Professional neurological care is crucial in managing the complex needs of ALS patients. It ensures the well-being of sick people.

Role of family in ongoing support

Family members often become the primary caregivers. They can help create a comfortable and accessible living environment. It ensures the safety and well-being of the patient. They can also provide emotional support, allowing the patient to navigate the emotional challenges of living with ALS.

Specialized training, tools, and techniques

Caregivers can benefit from training programs offered by ALS clinics. These programs provide valuable knowledge and skills to assist with mobility and communication. In addition to training, using helpful things for ALS patients can significantly enhance the quality of life for patients.

Resources for caregivers

ALS associations offer educational materials and peer support networks. It provides caregivers with a sense of community and guidance. These resources can also help caregivers accommodate the patient’s changing needs.

the nurse is taking the patient

Helpful Things for ALS Patients

It is crucial to provide the best possible living conditions to people who have faced severe illnesses in their lives. It is essential to provide them with comfort to tolerate the disease more easily. So, helpful things for ALS patients are vital to improve their everyday functionality. One of such necessary accessories is special communication devices. They allow patients to express their needs even when speech and movement no longer let them do so.

The advancements in adaptive technologies and devices significantly improve the quality of life for patients. These devices not only assist. They also empower individuals to maintain their independence. By leveraging these remarkable tools, sick people can enhance their daily lives.

Patients can also find great comfort in soft orthopedic chairs that support their bodies. Such chairs reduce excessive pressure on muscles and joints for those living with ALS. In addition, adapted crockery and cutlery specially designed for limited mobility can make eating and drinking easier. That is, in the modern world, enough things refute sick people’s lives. Here are a few more of their examples:

1. Adaptive technologies and devices

One crucial aspect is electronic communication devices. They allow ALS patients to express their thoughts and wishes, even if speech is lost. Wireless corrective devices for movement are also an integral part of adaptive technologies. Additionally, wheelchairs and lifts help patients maintain mobility. Thanks to constant research and innovation in this field, patients can access tools that significantly improve their quality of life.

2. Eye Tracking Systems

As ALS progresses, patients may lose control over their limbs. It makes it challenging to navigate electronic devices. Eye tracking systems can be a game-changer for ALS patients. Because they allow individuals to control a computer or smartphone using just their eye movements. So, by providing this helpful thing for those living with ALS, you can ease their task performance.

3. Mobility Devices

ALS gradually weakens the muscles, leading to mobility limitations. Mobility devices such as power wheelchairs or electric scooters are crucial for ALS patients’ independence and mobility. These devices are designed to provide safe and comfortable transportation. It lets patients move around both indoors and outdoors with ease. So, this is one more way to know how to help someone with ALS.

Conclusion

Support from relatives during illness is significant. And the role of medical professionals is no less crucial in managing the complexities of ALS. To provide your loved ones with the best treatment, contact LoneStar logists. Our experience in the logical field is immensely extensive. That’s why we know how to deal with specific problems for those with ASL. So, don’t hesitate to contact us for help. Together, we can overcome any disease with you!

FAQ

  • How can family members best support someone living with ALS?

They can show empathy and be there to listen and offer a shoulder to lean on. They can also accompany them to medical appointments and take notes. Thus, families can advocate for patients’ needs with healthcare professionals.

  • What professional care options are available for ALS patients?

ALS patients should seek care from a logist with expertise in ALS. These specialists can provide accurate diagnosis, disease monitoring, and tailored treatment plans. They can also improve patients’ quality of life through assistive devices.

  • Where can I find more resources on caring for someone with ALS?

You can start by visiting the ALS Association’s website. It provides a wealth of information and resources on caring for someone with ALS. You can also search for ALS support groups and organizations in your area.

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Edward Medina
Edward Medina
15:34 30 Jun 22
Just such an amazing staff that makes you feel like part of their family. I’ve been going there for over 5 years now... and each visit I get the very best care and treatments that I have ever received in the 20+ years that I’ve been dealing with severe debilitating migraines. Since i started seeing them the number of my migraines has dropped from 15-20 a month to 2-3 every 3 month. I highly recommend them …they will change your life!read more
Daneisha Johnson
Daneisha Johnson
22:20 19 May 22
Dr. Askari was very kind and explained everything so I could understand. The other staff were nice as well. I would... have gave 5 stars but I was a little taken aback when I checked in and had to pay 600.00 upfront. I think that should have been discussed in a appointment confirmation call or email just so I could have been prepared.read more
Jean Cooper
Jean Cooper
16:54 29 Apr 22
I love the office staff they are friendly and very helpful. Dr. JODIE is very caring and understanding to your needs... and wants to help you. I will go back. would recommend Dr. Dr. Jodie to other Patients in a heart beat. The team works well together.read more
Linda M
Linda M
19:40 02 Apr 22
I was obviously stressed, needing to see a neurologist. The staff was so patient and Dr. Ansari was so kind. At one... point he told me to relax, we have time, when I was relaying my history of my condition. That helped ease my stress. I have seen 3 other neurologists and he was the only one who performed any assessment tests on my cognitive and physical skills. At one point I couldn't complete two assessments and got upset and cried. I was told, it's OK. That's why you're here. I was truly impressed, and super pleased with the whole experience!read more
Leslie Durham
Leslie Durham
15:05 01 Apr 22
I've been coming here for about 5 years. The staff are ALWAYS friendly and knowledgeable. The Doctors are the absolute... best!! Jodie Moore is always in such a great mood which is a plus when you are already stressed. Highly recommendedread more
Monica Del Bosque
Monica Del Bosque
14:13 25 Mar 22
Since my first post my thoughts have changed here. It's unfortunate. My doctor and PA were great, but the office staff... is horrible. They never call you back when they say they will, they misinform you, they cause you too much stress wondering what's going on, they don't keep you posted. They never answer the phone. At this point I've left four messages in the last week, and I have sent three messages. Twice from their portal and one direct email. No response. My appointment is on Monday morning at 8:30am, no confirmation on my insurance and what's going on. What the heck is going on, this is ridiculous!I've given up... the stress her office staff has put me through is just not worth it. You can do so much better, please clean house, either change out your office staff, or find a way for them to be more efficient please. You have to do something. This is not how you want to run your practice. It leaves a very bad impression on your business.read more
Ron Buckholz
Ron Buckholz
23:32 23 Mar 22
I was actually pleasantly surprised with this visit! It took me a long time to get the appointment scheduled because no... one answers your phones EVER! After a month, I finally got in, and your staff was warm, friendly, and I was totally impressed! I feel like you will take care of my needs!read more
Steve Nabavi
Steve Nabavi
16:28 16 Mar 22
It was a nice visit. Happy staff doing all they can do to comfort the patients in a very calming environment. You ask... me they are earned a big gold star on the fridge. My only complaint they didn't give me any cookies.read more
Katie Lewis
Katie Lewis
16:10 10 Feb 22
Had very positive appointments with Jodie and Dr. Sheth for my migraine care. Jodie was so fast with the injections and... has so much valuable info. I started to feel light headed during checkout and the staff was SO helpful—giving me a chair, water, and taking me into a private room until I felt better. Highly recommend this practice for migraine patients, they know what they’re doing!!read more
Joshua Martinez
Joshua Martinez
16:02 10 Dec 21
I was scheduled to be checked and just want to say that the staff was fantastic. They were kind and helpful. I was... asked many questions related to what was going on and not once did I feel as though I was being brushed off. The front desk staff was especially great in assisting me. I'm scheduled to go back for a mri and am glad that I'll be going there.read more
Isabel Ivy
Isabel Ivy
21:42 03 Nov 21
I had such a good experience with Lone Star Neurology, Brent my MRI Tech was so awesome and made sure I was very... comfortable during the appointment. He gave me ear plugs, a pillow, leg support and blanket, easiest MRI ever lol 🤣 My 72 hour EEG nurse Amanda was also so awesome. She made sure I was take care of over the 3 days and took her time with the electrodes to make sure it was comfortable for me! Paige was also a huge help in answering all my questions when it came to my test results, and letting me know her honest opinions about how I should go forth with my treatment.read more
Leslie Luce
Leslie Luce
17:37 20 Oct 21
The professionalism and want to help attitude of this office was present from the moment I contacted them. The follow... up and follow through as well as their willingness to find a way to schedule my dad was above and beyond. We visited two offices in the same day with the same experience. I am appreciative of this—we spend a lot of time with doctors and this was top notch start to finish.read more
robert Parker
robert Parker
16:38 16 Apr 21
I love going to this office. The staff is friendly and helpful. The doctor is great. I am getting the best... neurological tests and treatment I have ever had. The only reason I did not give them a 5 star rating is because it is impossible to reach a live person at the office to reschedule appointments. Every time I have tried to get through to the office it says all people are busy and I am sent to a voicemail. If they could get their phone answering fixed, I would give them a strong 5 stars.read more
MaryAnn Hornbaker
MaryAnn Hornbaker
00:26 25 Feb 21
Dr. Harney is an excellent Dr. I found him friendly , personable and thorough. I evidently am an unusual case. ... Therefore he spent a Hugh amount of time educating me. He even gave me literature to further explain my condition and how to follow up. This is something you rarely get from your doctors. So I am more than please with my doctor and his staff.read more
Roger Arguello
Roger Arguello
03:05 29 Jan 21
Always courteous, professional. The staff is very friendly and always work with you to find the best appointment time.... The care team has been great. Always taking the time to listen to your concerns and to find the best treatment.read more
Margaret Rowland
Margaret Rowland
01:12 27 Jan 21
I have been a patient at Lone Star Neurology for several years. Now both my adult daughters also are patients there. I... love Jodie. She is always so prompt whether it is a teleamed call are a visit in the office. She takes the time to explain everything to me and answers all my questions. I am so blessed to have Jodie as my doctor.read more
Susan Miller
Susan Miller
03:01 13 Jan 21
My husband had an accident 5 years ago and Lone Star Neurology has been such a blessing to us with my husbands care.... Jodie Moore is his provider and she is amazing! Jodie is very knowledgeable, caring, and thorough. She takes her time with you, making sure your needs are met and she is happy to answer any questions you may have. Lone Star Neurology’s patients are very lucky to have Jodie providing their care. Thank you Lone Star Neurology and especially Jodie for everything you have done for us. Jodie, you are the best!read more
Windalyn C
Windalyn C
01:32 09 Jan 21
Jodie is wonderful. She is very caring and knowledgeable. I have been to over a dozen neurologists, and none were able... to help me as much as they have here. Thanks!read more
Katie Kordel
Katie Kordel
00:40 09 Jan 21
Jodi Moore, nurse practitioner, is amazing. I have suffered from frequent, debilitating headaches for almost 20 years.... She has provided the best proactive and responsive care I have ever received. My quality of life has been greatly improved by her caring approach and tenacity in finding solutions.read more
Ellie Natsis
Ellie Natsis
15:41 07 Jan 21
I have had the best experience at this neurologist's office! For over a year I have been receiving iv treatments here... each month and my nurse, Bobbie is beyond wonderful!! She's so attentive, knowledgeable, caring, and detail oriented. She makes an otherwise uncomfortable experience much more pleasant and definitely puts me at ease! She also helps me with my insurance,ordering this specialty medication and dealing with the ordering process which is no easy feat.Needless to say, she goes above a beyond in every way and I'm so grateful to this office and to Bobbie for all they do for me!read more
Matt Morris
Matt Morris
15:39 07 Jan 21
Let me start by saying that I have been coming here for years. Due to my autoimmune disease, I am in this office... once every three weeks for multiple hours at a time. The office is very clean and the staff very friendly. My only complaint would be there communication via phone. They aren't the best at responding if you leave a voicemail and expect a call back. I understand that this is prob just due to the sheer number of alls they receive daily. What I can say I like the best about the office are the people. Bobby who handles my infusions is great. I never have any issues with her setting up my infusions. She is very quick to reply to messages sent via text and if she were to leave then my whole opinion of the office may change. I also enjoy people like Matt, Lauren, and Jodi. I appreciate all that they do for me and without this team I'm not sure I would be as happy as I am to visit the office as frequently as I have to. Please ensure that these folks are recognized as they are what makes my visit to this office so tolerable :).read more
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  1. December 6, 2023

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