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Muscular Dystrophy Life Expectancy in Adults

Medically reviewed by Sandeep Dhanyamraju
Medically reviewed by Sandeep Dhanyamraju

Life with muscular dystrophy can be incredibly challenging. One of the most typical inquiries patients ask is about longevity. Too often, we hear stories of parents worrying about their children’s future. They live in a state of uncertainty. It is understandable to want to know the prospects for adults living with MD. 

A major issue for those with muscular dystrophy is longevity. MD can make daily living difficult. In addition, life can be physically and mentally debilitating. But understanding adult life expectancy is essential for planning one’s future. Life expectancy varies significantly from patient to patient because of the disease’s several types and degrees of severity.

We’ll examine the different forms of muscular dystrophy in this post. We shall discover the typical lifespan of those who have various forms of this illness.

We’ll also discover how medical progress might make it possible for certain living longer for those with MD. Patients can then decide how to approach their disease therapy in an informed manner.

 

Duchenne Muscular Dystrophy Life Expectancy

Duchenne Muscular DystrophyThe genetic disease DMD is a degenerative, progressive condition.  Both muscle function and strength suffer. Doctors identify the condition before age five due to its hereditary origin.

A mutation in the X chromosome gene causes DMD. It leads to a disruption in the body’s ability to produce dystrophin. Dystrophin is a protein that everyone needs for muscle health. As dystrophin production decreases, muscles become weaker. Over time, muscles deteriorate, resulting in physical disability. 

Until now, there has been no cure for this life-limiting disorder. But there is a lot of voluntary research underway. They aim to find drug therapies. They can lengthen a person’s life and enhance their quality of life if they have DMD.

 

Characteristic symptoms of this disease may include:

  • Difficulty getting up from a sitting or lying position;
  • An unusual gait or manner of walking often called “waddling”;
  • Difficulty climbing stairs;
  • Frequent falls;
  • Problem doing up buttons;
  • Loss of muscle tone;
  • Elevated levels of creatine kinase.

 

This illness can cause spinal abnormalities if it is not treated. Additionally, significant heart disease and respiratory issues are both possible.

Duchenne life expectancy varies from person to person, just like other diseases. Patients with DMD, however, have a shorter life expectancy. Respiratory or cardiac issues are to blame.

The average lifespan for Duchenne muscular dystrophy is 18 to 25 years. With early treatment, it can reach 30 years. 

But recent technological advances have made it possible to improve treatment. As a result, people living with the disease live better and longer.

 

Becker Muscular Dystrophy Life ExpectancyBecker Muscular Dystrophy

Hereditary BMD occurs as a hereditary condition. A specific type of muscular dystrophy falls within the DMD umbrella. It results in progressively weaker muscles all across the body. Both men and women can have such diseases.

DMD is distinct from DMD in that individuals with DMD frequently lead everyday lives. The deterioration of muscle is slower than in DMD patients.

 

Becker muscular dystrophy signs and symptoms include:

  • Muscle stiffness;
  • Cramping;
  • Cardiomyopathy;
  • Scoliosis (curvature of the spine);
  • Respiratory failure;
  • Difficulty swallowing food and liquids. 

 

There is currently no known treatment for BMD. Treatment focuses on physical therapy to slow the loss of muscle mass.

Becker muscular dystrophy life expectancy can vary greatly. Some live a whole life into middle age and beyond. In other cases, death may occur earlier because of complications such as:

  • Respiratory failure;
  • Heart failure. 

People with this diagnosis must seek medical care regularly. 

 

Life Expectancy of Congenital Muscular Dystrophy 

Congenital Muscular Dystrophy CMD is a group of genetic diseases. They appear at birth. CMD can cause various degrees of muscle weakness. It can even cause hypotonia and impaired motor function. 

 

But, depending on the type of CMD, people may experience several complications. Among them:

 

  • Progressive scoliosis
  • Vision and hearing loss
  • Heart problems
  • Cognitive defects
  • Shortness of breath. 

 

The prognosis for Congenital muscular dystrophy varies greatly. However, treatment can aid in symptom relief and life quality maintenance.

Unfortunately, the life expectancy of people with CMD can vary greatly. Currently, few people are known to survive beyond adolescence. Others can lead a whole life into adulthood. But still, many people don’t live to be old. It is because the symptoms get worse over time.

We hope that as research advances, the understanding of this disease will evolve. That way, people will be able to develop more effective treatments.

 

Emery-Dreifuss Muscular Dystrophy Life Expectancy

Emery-Dreifuss Muscular Dystrophy

The hereditary condition Emery-Dreyfus muscular dystrophy (EDMD) is uncommon. Gene mutations are the cause of the disease. Usually, these genes enable standard muscle construction and function. Progressive muscle weakening is a result, typically affecting the lower legs, elbows, and shoulders. Joint contractures and heart conduction abnormalities may result. They may result in issues with heart rate and rhythm.

 

People with EDMD may have the following:

  • Metabolic abnormalities;
  • Muscle wasting;
  • Progressive contractures of the joints;
  • Stiffness of the calves. 

 

Different symptoms include: 

  • Changes in heart rhythm;
  • Cardiomyopathy;
  • Permanent disability. 

 

If you take the statistics as a whole, children still get this diagnosis. Doctors most likely do it as early as possible because the symptoms appear early. Has the person been diagnosed with this disease? Then his average life expectancy for muscular dystrophy is 20 years. If not treated properly, a person may spend less than 20 years. Treatment and disease are interrelated because if left untreated, the disease will progress.

Because it enables patients to receive prompt medical attention, early diagnosis is essential. It might slow the development of EDMD.

 

Life Expectancy of Distal Muscular Dystrophy 

Distal Muscular DystrophyThe condition known as distal muscular dystrophy (DD) is sporadic. It affects about two persons in a million. It fits into the category of neuromuscular disorders. It implies that it impacts how the nerves and muscles communicate. It impacts the muscles in a few parts, such as the arms and legs. The distal muscles are most affected by DD, which makes them weak and worn out.

 

The type of distal muscular dystrophy will determine the symptoms. However, typical symptoms include the following:

  • Loss of muscle mass in the arms and legs.
  • Difficulty walking.
  • Dropping objects due to a weak grip.
  • Weakness in the knee, hip, and shoulder joints.
  • Loss of facial muscle tone and sagging.

 

Physical impairment results from this type of muscle wasting. Without the proper care, it can eventually get worse.

Muscular dystrophy life expectancy in adults is not tiny. But once more, it depends on how serious the illness is. People who have a moderate variety typically live to reach 50 years old. Only teenagers or young adults may survive the severe form.

It is vital to understand that people with the disease face serious complications. They can affect their ability to cope with other disorders. Thus, family and friends must provide appropriate care to make their lives comfortable.

 

Facioscapulohumeral Muscular Dystrophy Life ExpectancyFacioscapulohumeral Muscular Dystrophy

It is often abbreviated as FSHD, and is a genetic muscle disease. It affects the muscles:

  • Face (facio);
  • Scapula (scapulo);
  • The upper arms (humeral). 

 

If someone has the condition, they definitely have symptoms. Usually, a person can experience a variety of symptoms, from mild to severe. Usually, parents notice them first. All because people notice their first symptoms when they are 10 to 15 years old. Some of the most popular symptoms occur in the muscles:

  • Face;
  • Eyes;
  • Shoulders;
  • Upper arms. 

It can lead to:

  • Difficulties in facial expression: smiling, eyelid closing, and lip clenching; 
  • Difficulty moving the eyes: double vision; 
  • Drooping shoulders; 
  • Difficulty raising the arms above the head; 
  • Flexion of the shoulder blades when the components hold at the sides; 
  • Foot deformities and a waddling gait. 

FSHD is brought on by an anomaly on chromosome 4q35, which lacks the protein. A common side effect of the disease is inadequate self-care.

Over many years of research, doctors have never determined the life expectancy of people with FSHD. That’s because there’s a huge difference. Some people can live to be 50 years old, and some don’t live to be 20. It all depends on what treatments you use. On average, we can say 30-35 years of life expectancy.

 

Life Expectancy of Limb-Girdle Muscular Dystrophy 

Limb-Girdle Muscular Dystrophy A unique set of hereditary genetic illnesses known as LMDD. They mostly have an impact on human muscles. Skeletal muscles gradually deteriorate and are depleted. It results in mobility issues.

 

Symptoms of LGMD usually become noticeable in adolescents between the ages of 8 and 16. Although there are several forms of LGMD, common signs and symptoms include the following:

  • Muscle weakness in the arms, legs, and pelvis; 
  • Difficulty walking; 
  • Difficulty climbing stairs; 
  • Fatigue after mild activity; 
  • Myopathic changes on an electromyogram; 
  • Elevated serum creatine kinase levels; 
  • Decreased strength and abnormal movements such as twitching or jerking. 

 

The lifespan of limb muscular dystrophy (LGMD) is challenging to estimate. All because there is a wide range of symptoms and the fact that it is a hereditary disease. 

If you have a mild form of the disease, you have every chance of living a long and happy life. But if you have a more prolapsed form, there is an unfortunate risk that your life will be shortened. 

In order to prevent this from happening, you will need treatment! For example, you can do physical therapy. Physical therapy can help you improve your quality of life.

Placebo-controlled clinical trials are underway in hopes of slowing or stopping the progression of LGMD and reducing or eliminating its effect on life expectancy. 

 

Tibial Muscular Dystrophy Life Expectancy

Tibial Muscular DystrophyTibial muscular dystrophy (TMD) is a rare genetic disease. It affects the lower leg muscles. It is caused mainly by mutations in the MTM1 gene. It is often characterized by early weakness, gait disturbance, and progressive atrophy of the calf muscles. To skeletal muscle weakness, there may also be:

  • Joint contractures;
  • Cramps;
  • Foot deformities;
  • Scoliosis. 

Diagnosis of this disease is mainly based on clinical neuromuscular examination. Several genetic tests are being developed to ease diagnosis. It is important to note that the clinical manifestations of the disease may vary. It may also progress at different rates. 

Prognosis in muscular dystrophy becomes an essential factor when considering treatment strategies. Life expectancy varies from patient to patient. Most patients live to be 50 years of age or older. 

Patients with milder forms of the disease tend to live longer. You should consider the impact of each case in the context.

 

Life Expectancy of Myotonic Muscular Dystrophy 

Myotonic Muscular Dystrophy The heart, skeletal muscles, and other organs are all impacted. One or both copies of the DMPK gene have a strange genetic mutation linked to the disorder. There is a gene for it on chromosome 19.

 

DMD causes progressive weakening of the skeletal muscles. It can cause problems with:

  • Balance;
  • Speech;
  • Difficulty swallowing. 

People with MMD may also have problems with the following: 

  • The heart;
  • The endocrine system;
  • The nervous system. 

 

MMD has no known treatment. However, scientists are attempting to create novel cures. Beta-blockers, anticonvulsants, steroids, and physical therapy to ease exhaustion are frequently used as part of the treatment for MMD.

The lifespan of MMD typically varies greatly. According to many individual factors. While lesser variants with little or no symptoms may allow people to enjoy a life expectancy close to normal, more severe cases may result in a reduced lifespan.

 

Bottom Line

The team of our neurological clinic employs the best, highly qualified doctors. Every day they help many patients stabilize their conditions. Also, they cure many neurological diseases, if possible. With the help of modern equipment, we carry out accurate diagnostics. It allows us to identify diseases early. Sign up for a consultation with our neurologist right now by phone: 214-619-1910.

 

 

FAQs

Is muscular dystrophy fatal?

Some types of muscular dystrophy, such as average lifespan muscular dystrophy in boys, are fatal. Other types cause disability, and people have a usual lifespan.

How long do people with muscular dystrophy live?

People with the condition will usually only live into their 20s or 30s. But it depends on the form of the disease. In some types of disease, you can live up to 50 years.

What is the most common cause of death in muscular dystrophy?

The most common cause of Duchenne life expectancy is cardiomyopathy/respiratory failure. Patients die in the second or third decade of life.

How is muscular dystrophy transmitted?

Muscular dystrophies are X-linked recessive patterns. Next, it passes from mother to son.

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Just such an amazing staff that makes you feel like part of their family. I’ve been going there for over 5 years now... and each visit I get the very best care and treatments that I have ever received in the 20+ years that I’ve been dealing with severe debilitating migraines. Since i started seeing them the number of my migraines has dropped from 15-20 a month to 2-3 every 3 month. I highly recommend them …they will change your life!read more
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Dr. Askari was very kind and explained everything so I could understand. The other staff were nice as well. I would... have gave 5 stars but I was a little taken aback when I checked in and had to pay 600.00 upfront. I think that should have been discussed in a appointment confirmation call or email just so I could have been prepared.read more
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I love the office staff they are friendly and very helpful. Dr. JODIE is very caring and understanding to your needs... and wants to help you. I will go back. would recommend Dr. Dr. Jodie to other Patients in a heart beat. The team works well together.read more
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Linda M
19:40 02 Apr 22
I was obviously stressed, needing to see a neurologist. The staff was so patient and Dr. Ansari was so kind. At one... point he told me to relax, we have time, when I was relaying my history of my condition. That helped ease my stress. I have seen 3 other neurologists and he was the only one who performed any assessment tests on my cognitive and physical skills. At one point I couldn't complete two assessments and got upset and cried. I was told, it's OK. That's why you're here. I was truly impressed, and super pleased with the whole experience!read more
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I've been coming here for about 5 years. The staff are ALWAYS friendly and knowledgeable. The Doctors are the absolute... best!! Jodie Moore is always in such a great mood which is a plus when you are already stressed. Highly recommendedread more
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Monica Del Bosque
14:13 25 Mar 22
Since my first post my thoughts have changed here. It's unfortunate. My doctor and PA were great, but the office staff... is horrible. They never call you back when they say they will, they misinform you, they cause you too much stress wondering what's going on, they don't keep you posted. They never answer the phone. At this point I've left four messages in the last week, and I have sent three messages. Twice from their portal and one direct email. No response. My appointment is on Monday morning at 8:30am, no confirmation on my insurance and what's going on. What the heck is going on, this is ridiculous!I've given up... the stress her office staff has put me through is just not worth it. You can do so much better, please clean house, either change out your office staff, or find a way for them to be more efficient please. You have to do something. This is not how you want to run your practice. It leaves a very bad impression on your business.read more
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I was actually pleasantly surprised with this visit! It took me a long time to get the appointment scheduled because no... one answers your phones EVER! After a month, I finally got in, and your staff was warm, friendly, and I was totally impressed! I feel like you will take care of my needs!read more
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It was a nice visit. Happy staff doing all they can do to comfort the patients in a very calming environment. You ask... me they are earned a big gold star on the fridge. My only complaint they didn't give me any cookies.read more
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Had very positive appointments with Jodie and Dr. Sheth for my migraine care. Jodie was so fast with the injections and... has so much valuable info. I started to feel light headed during checkout and the staff was SO helpful—giving me a chair, water, and taking me into a private room until I felt better. Highly recommend this practice for migraine patients, they know what they’re doing!!read more
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I was scheduled to be checked and just want to say that the staff was fantastic. They were kind and helpful. I was... asked many questions related to what was going on and not once did I feel as though I was being brushed off. The front desk staff was especially great in assisting me. I'm scheduled to go back for a mri and am glad that I'll be going there.read more
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I had such a good experience with Lone Star Neurology, Brent my MRI Tech was so awesome and made sure I was very... comfortable during the appointment. He gave me ear plugs, a pillow, leg support and blanket, easiest MRI ever lol 🤣 My 72 hour EEG nurse Amanda was also so awesome. She made sure I was take care of over the 3 days and took her time with the electrodes to make sure it was comfortable for me! Paige was also a huge help in answering all my questions when it came to my test results, and letting me know her honest opinions about how I should go forth with my treatment.read more
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The professionalism and want to help attitude of this office was present from the moment I contacted them. The follow... up and follow through as well as their willingness to find a way to schedule my dad was above and beyond. We visited two offices in the same day with the same experience. I am appreciative of this—we spend a lot of time with doctors and this was top notch start to finish.read more
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MaryAnn Hornbaker
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Dr. Harney is an excellent Dr. I found him friendly , personable and thorough. I evidently am an unusual case. ... Therefore he spent a Hugh amount of time educating me. He even gave me literature to further explain my condition and how to follow up. This is something you rarely get from your doctors. So I am more than please with my doctor and his staff.read more
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Always courteous, professional. The staff is very friendly and always work with you to find the best appointment time.... The care team has been great. Always taking the time to listen to your concerns and to find the best treatment.read more
Margaret Rowland
Margaret Rowland
01:12 27 Jan 21
I have been a patient at Lone Star Neurology for several years. Now both my adult daughters also are patients there. I... love Jodie. She is always so prompt whether it is a teleamed call are a visit in the office. She takes the time to explain everything to me and answers all my questions. I am so blessed to have Jodie as my doctor.read more
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Susan Miller
03:01 13 Jan 21
My husband had an accident 5 years ago and Lone Star Neurology has been such a blessing to us with my husbands care.... Jodie Moore is his provider and she is amazing! Jodie is very knowledgeable, caring, and thorough. She takes her time with you, making sure your needs are met and she is happy to answer any questions you may have. Lone Star Neurology’s patients are very lucky to have Jodie providing their care. Thank you Lone Star Neurology and especially Jodie for everything you have done for us. Jodie, you are the best!read more
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Windalyn C
01:32 09 Jan 21
Jodie is wonderful. She is very caring and knowledgeable. I have been to over a dozen neurologists, and none were able... to help me as much as they have here. Thanks!read more
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Jodi Moore, nurse practitioner, is amazing. I have suffered from frequent, debilitating headaches for almost 20 years.... She has provided the best proactive and responsive care I have ever received. My quality of life has been greatly improved by her caring approach and tenacity in finding solutions.read more
Ellie Natsis
Ellie Natsis
15:41 07 Jan 21
I have had the best experience at this neurologist's office! For over a year I have been receiving iv treatments here... each month and my nurse, Bobbie is beyond wonderful!! She's so attentive, knowledgeable, caring, and detail oriented. She makes an otherwise uncomfortable experience much more pleasant and definitely puts me at ease! She also helps me with my insurance,ordering this specialty medication and dealing with the ordering process which is no easy feat.Needless to say, she goes above a beyond in every way and I'm so grateful to this office and to Bobbie for all they do for me!read more
Matt Morris
Matt Morris
15:39 07 Jan 21
Let me start by saying that I have been coming here for years. Due to my autoimmune disease, I am in this office... once every three weeks for multiple hours at a time. The office is very clean and the staff very friendly. My only complaint would be there communication via phone. They aren't the best at responding if you leave a voicemail and expect a call back. I understand that this is prob just due to the sheer number of alls they receive daily. What I can say I like the best about the office are the people. Bobby who handles my infusions is great. I never have any issues with her setting up my infusions. She is very quick to reply to messages sent via text and if she were to leave then my whole opinion of the office may change. I also enjoy people like Matt, Lauren, and Jodi. I appreciate all that they do for me and without this team I'm not sure I would be as happy as I am to visit the office as frequently as I have to. Please ensure that these folks are recognized as they are what makes my visit to this office so tolerable :).read more
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