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Living with Tourette’s Syndrome: Coping Strategies

Sandeep Dhanyamraju MD
Medically reviewed by Sandeep Dhanyamraju
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Sandeep Dhanyamraju MD
Medically reviewed by Sandeep Dhanyamraju

In the United States, out of a thousand children aged 6 to 17, three are diagnosed with Tourette syndrome. Living with such a problem is quite tricky. After all, this neurological disease causes uncontrollable tics in people. But you can better control your symptoms by developing effective coping strategies and perseverance. Several approaches are helpful while living with Tourette Syndrome:

  • Find the right treatment plan

Work closely with a doctor to explore medical and therapeutic options. It can take time to find what works best for you.

  • Reduce stress and anxiety

Stress and anxiety often exacerbate tics, so managing them is critical.

  • Practice self-care

Prioritize sleep and limit caffeine. In addition, maintain a healthy diet and exercise regimen. 

Life with Tourette causes difficulties in everyday life. But it is crucial to accept the fact that you have this disease. Focus on your strengths and abilities rather than your tics. Then it will be much easier for you to get better.


Strategies for Managing Tourette Syndrome

Twitching in the neck, face, and shoulders is a complex of involuntary reflex movements. In Tourette syndrome, they are expressed quickly and monotonously. Such symptoms cause significant discomfort to people with TS. However, several strategies can help people cope with Tourette syndrome in everyday life:

  • Learn about TS and available treatments. It will empower you to manage your condition better. Educating family and friends can help them understand TS and support you.
  • Join a local support group or online community to connect with others living with Tourettes. Communicating with people who share a common illness makes your condition more manageable.
  • Work with your doctor to find the medication and dosage that is most effective for you. This way, you can choose the drug with the fewest side effects.

Before you work on the manifestation of this condition, see a neurologist. The doctor will determine the level of intensity of your tics. 

Based on our experience, there are the top 5 strategies for managing this illness:

1. Behavioral therapy

It is also known as exposure and response prevention (ERP). It is the most effective treatment. ERP helps people with Tourette syndrome gain awareness and control over their tics. This process helps to retrain the brain’s habit loop, not automatically engage in the tic. Some of the techniques used in behavioral therapy for it  include:

  • Habit reversal. It’s replacing the tic with less disruptive behavior. It helps retrain the brain to engage in an alternative behavior when the urge to tic arises.
  • Competing response training. Individuals are taught to engage in physically incompatible behaviors with their tics. It makes it physically challenging to tic and helps strengthen control over urges.


2. Healthy lifestyle

It is good not only for your physical health. Besides, it helps release endorphins that improve your mood. And when you are in a good mood, you relieve your stress. Accordingly, this way, you can ease life with Tourette’s. So, follow some rules for a healthy lifestyle:

  • Eat a balanced, nutritious diet. A healthy diet boosts energy, supports your immune system, and promotes better sleep.
  • Get enough sleep. Most adults living with Tourettes need 7-9 hours of sleep per night. If you don’t sleep enough, you reduce your ability to cope with daily challenges.
  • Manage stress levels. While stress doesn’t cause Tourette’s, it can exacerbate symptoms and tics. So, using stress management techniques is vital for your well-being.
  • Avoid triggers when possible. Common triggers include lack of sleep, stress, flashing lights, and loud noises. Learn what triggers your symptoms and tics and make adjustments to avoid them.


3. Support groups

Connecting with those living with Tourette’s syndrome can provide empathy. Support groups offer opportunities to share experiences, insights, and coping strategies. You may find local support groups to join or look for online communities:

  • Local support groups allow for face-to-face interaction and bonding. Check with hospitals or community health centers in your area. Attending meetings can help combat feelings of isolation and provide motivation.
  • Online communities, like forums and chat rooms, provide 24/7 access to people with Tourette syndrome. You can ask questions and offer support anonymously via your digital device. Look for moderated groups to ensure accurate information and constructive conversations.


Daily Life of People with Tourette SyndromeTourette Syndrome infographic

Living with such a disorder presents a unique set of challenges. Comprehending the daily experiences of patients with this condition is crucial. It helps to foster empathy and support. This exploration delves into the intricacies of people’s daily lives with this ailment. We shed light on their resilience, coping mechanisms, and the broader impact on their personal and social interactions. The daily life of those living with Tourette’s syndrome consists of:

  1. Tics Management Strategies: Individuals often employ various strategies to manage their tics. Among them are deep breathing, mindfulness, or redirecting movements.
  2. Educational and Occupational Considerations: Navigating educational and occupational settings may involve discussions with teachers or employers. They are about the condition, reasonable accommodations, and fostering understanding among peers.
  3. Social Interactions and Stigma: Daily life includes addressing social challenges. Among them are potential stigma, misconceptions, and educating others about this ailment. They help to promote a supportive environment.
  4. Medication and Therapeutic Approaches: Many individuals incorporate medication or therapeutic interventions into their daily routines. They help to address manifestations and enhance overall well-being.
  5. Impact on Personal Relationships: This syndrome can influence personal relationships with open communication. They play a pivotal role in fostering understanding and support among family and friends.
  6. Advocacy and Community Engagement: Engaging in advocacy efforts and connecting with the Tourette community become integral in daily life. It offers mutual support and shared experiences.
  7. Embracing Individuality: Despite challenges, individuals with such syndrome often struggle to embrace their uniqueness. They are fostering resilience and advocating for a more inclusive society.

Understanding the daily life of people with Tourette Syndrome goes beyond the visible signs. It provides insight into the holistic experience of managing this neurological condition. We can contribute to a more supportive and inclusive world through awareness, education, and empathy. It is helpful for those navigating life with this syndrome.


How to Live Fully Life with Tourette’s

Caregiver with elderly woman

Living with Tourette’s syndrome presents unique challenges. It’s also an opportunity to lead a fulfilling life of resilience and self-discovery. This guide explores strategies and insights. They empower individuals and support their journey toward embracing life with Tourette’s.

  1. Embracing Individuality: Recognize that people with Tourette’s ailment have unique strengths and qualities. They are fostering self-acceptance and celebrating Individuality.
  2. Building a Supportive Network: Cultivate connections with understanding friends, family, and communities. They help to create a robust support system that embraces and uplifts those living with Tourette’s ailment.
  3. Mindful Tics Management: Explore and adopt effective strategies for tics. Among them are incorporating mindfulness, deep breathing, or redirecting movements into daily routines.
  4. Open Communication: To create an environment and foster open communication with educators, employers, and peers. It acknowledges and accommodates the challenges associated with living with Tourette’s ailment.
  5. Educational and Occupational Empowerment: Pursue educational and occupational goals by addressing the unique aspects of Tourette’s syndrome. Also, seek reasonable accommodations when needed.
  6. Advocacy and Awareness: Engage in advocacy efforts to raise awareness about Tourette’s syndrome. They contribute to a more informed and inclusive society.
  7. Holistic Well-being: Prioritize overall well-being by incorporating medication and therapeutic interventions. Also, include self-care practices in daily life.
  8. Thriving in Relationships: Cultivate solid personal relationships by fostering understanding among family and friends. They create a supportive foundation for those with Tourette’s syndrome.

Living with Tourette’s syndrome can be a journey of resilience and empowerment. Individuals can lead whole and meaningful lives. They can prove that Tourette’s does not define but adds a unique dimension to their remarkable stories.


A Word From Lone Star Neurology

With the right mindset and support system, living with Tourettes can be more accessible. Stay focused on self-care and educate others about your condition. To help you manage your symptoms, contact Lone Star Neurologists. Our specialists will identify your neurological problems promptly. Besides, we will prescribe the proper treatment for you to prevent their progression. So, don’t let Tourette Syndrome define you, and contact us.



How hard is it to live with Tourette’s?

For some individuals, tics may be mild and manageable. Others may experience more pronounced tics that can interfere with daily activities.

Does Tourette’s get worse with age?

Tourette’s is a highly individualized condition. Some people’s symptoms may worsen with age, while others may be stable.

Can you live an everyday life with Tourettes?

Yes, it is possible to live an everyday life with Tourette’s syndrome. With appropriate management, many individuals can lead fulfilling and successful lives with Tourette’s. The main thing is approaching it with a positive mindset and focusing on your strengths.

How rare is Tourette’s?

Tourette’s syndrome is considered a relatively rare neurological disorder. It affects approximately 0.3% to 1% of the population.

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Edward Medina
Edward Medina
15:34 30 Jun 22
Just such an amazing staff that makes you feel like part of their family. I’ve been going there for over 5 years now... and each visit I get the very best care and treatments that I have ever received in the 20+ years that I’ve been dealing with severe debilitating migraines. Since i started seeing them the number of my migraines has dropped from 15-20 a month to 2-3 every 3 month. I highly recommend them …they will change your life!read more
Daneisha Johnson
Daneisha Johnson
22:20 19 May 22
Dr. Askari was very kind and explained everything so I could understand. The other staff were nice as well. I would... have gave 5 stars but I was a little taken aback when I checked in and had to pay 600.00 upfront. I think that should have been discussed in a appointment confirmation call or email just so I could have been more
Jean Cooper
Jean Cooper
16:54 29 Apr 22
I love the office staff they are friendly and very helpful. Dr. JODIE is very caring and understanding to your needs... and wants to help you. I will go back. would recommend Dr. Dr. Jodie to other Patients in a heart beat. The team works well more
Linda M
Linda M
19:40 02 Apr 22
I was obviously stressed, needing to see a neurologist. The staff was so patient and Dr. Ansari was so kind. At one... point he told me to relax, we have time, when I was relaying my history of my condition. That helped ease my stress. I have seen 3 other neurologists and he was the only one who performed any assessment tests on my cognitive and physical skills. At one point I couldn't complete two assessments and got upset and cried. I was told, it's OK. That's why you're here. I was truly impressed, and super pleased with the whole experience!read more
Leslie Durham
Leslie Durham
15:05 01 Apr 22
I've been coming here for about 5 years. The staff are ALWAYS friendly and knowledgeable. The Doctors are the absolute... best!! Jodie Moore is always in such a great mood which is a plus when you are already stressed. Highly recommendedread more
Monica Del Bosque
Monica Del Bosque
14:13 25 Mar 22
Since my first post my thoughts have changed here. It's unfortunate. My doctor and PA were great, but the office staff... is horrible. They never call you back when they say they will, they misinform you, they cause you too much stress wondering what's going on, they don't keep you posted. They never answer the phone. At this point I've left four messages in the last week, and I have sent three messages. Twice from their portal and one direct email. No response. My appointment is on Monday morning at 8:30am, no confirmation on my insurance and what's going on. What the heck is going on, this is ridiculous!I've given up... the stress her office staff has put me through is just not worth it. You can do so much better, please clean house, either change out your office staff, or find a way for them to be more efficient please. You have to do something. This is not how you want to run your practice. It leaves a very bad impression on your more
Ron Buckholz
Ron Buckholz
23:32 23 Mar 22
I was actually pleasantly surprised with this visit! It took me a long time to get the appointment scheduled because no... one answers your phones EVER! After a month, I finally got in, and your staff was warm, friendly, and I was totally impressed! I feel like you will take care of my needs!read more
Steve Nabavi
Steve Nabavi
16:28 16 Mar 22
It was a nice visit. Happy staff doing all they can do to comfort the patients in a very calming environment. You ask... me they are earned a big gold star on the fridge. My only complaint they didn't give me any more
Katie Lewis
Katie Lewis
16:10 10 Feb 22
Had very positive appointments with Jodie and Dr. Sheth for my migraine care. Jodie was so fast with the injections and... has so much valuable info. I started to feel light headed during checkout and the staff was SO helpful—giving me a chair, water, and taking me into a private room until I felt better. Highly recommend this practice for migraine patients, they know what they’re doing!!read more
Joshua Martinez
Joshua Martinez
16:02 10 Dec 21
I was scheduled to be checked and just want to say that the staff was fantastic. They were kind and helpful. I was... asked many questions related to what was going on and not once did I feel as though I was being brushed off. The front desk staff was especially great in assisting me. I'm scheduled to go back for a mri and am glad that I'll be going more
Isabel Ivy
Isabel Ivy
21:42 03 Nov 21
I had such a good experience with Lone Star Neurology, Brent my MRI Tech was so awesome and made sure I was very... comfortable during the appointment. He gave me ear plugs, a pillow, leg support and blanket, easiest MRI ever lol 🤣 My 72 hour EEG nurse Amanda was also so awesome. She made sure I was take care of over the 3 days and took her time with the electrodes to make sure it was comfortable for me! Paige was also a huge help in answering all my questions when it came to my test results, and letting me know her honest opinions about how I should go forth with my more
Leslie Luce
Leslie Luce
17:37 20 Oct 21
The professionalism and want to help attitude of this office was present from the moment I contacted them. The follow... up and follow through as well as their willingness to find a way to schedule my dad was above and beyond. We visited two offices in the same day with the same experience. I am appreciative of this—we spend a lot of time with doctors and this was top notch start to more
robert Parker
robert Parker
16:38 16 Apr 21
I love going to this office. The staff is friendly and helpful. The doctor is great. I am getting the best... neurological tests and treatment I have ever had. The only reason I did not give them a 5 star rating is because it is impossible to reach a live person at the office to reschedule appointments. Every time I have tried to get through to the office it says all people are busy and I am sent to a voicemail. If they could get their phone answering fixed, I would give them a strong 5 more
MaryAnn Hornbaker
MaryAnn Hornbaker
00:26 25 Feb 21
Dr. Harney is an excellent Dr. I found him friendly , personable and thorough. I evidently am an unusual case. ... Therefore he spent a Hugh amount of time educating me. He even gave me literature to further explain my condition and how to follow up. This is something you rarely get from your doctors. So I am more than please with my doctor and his more
Roger Arguello
Roger Arguello
03:05 29 Jan 21
Always courteous, professional. The staff is very friendly and always work with you to find the best appointment time.... The care team has been great. Always taking the time to listen to your concerns and to find the best more
Margaret Rowland
Margaret Rowland
01:12 27 Jan 21
I have been a patient at Lone Star Neurology for several years. Now both my adult daughters also are patients there. I... love Jodie. She is always so prompt whether it is a teleamed call are a visit in the office. She takes the time to explain everything to me and answers all my questions. I am so blessed to have Jodie as my more
Susan Miller
Susan Miller
03:01 13 Jan 21
My husband had an accident 5 years ago and Lone Star Neurology has been such a blessing to us with my husbands care.... Jodie Moore is his provider and she is amazing! Jodie is very knowledgeable, caring, and thorough. She takes her time with you, making sure your needs are met and she is happy to answer any questions you may have. Lone Star Neurology’s patients are very lucky to have Jodie providing their care. Thank you Lone Star Neurology and especially Jodie for everything you have done for us. Jodie, you are the best!read more
Windalyn C
Windalyn C
01:32 09 Jan 21
Jodie is wonderful. She is very caring and knowledgeable. I have been to over a dozen neurologists, and none were able... to help me as much as they have here. Thanks!read more
Katie Kordel
Katie Kordel
00:40 09 Jan 21
Jodi Moore, nurse practitioner, is amazing. I have suffered from frequent, debilitating headaches for almost 20 years.... She has provided the best proactive and responsive care I have ever received. My quality of life has been greatly improved by her caring approach and tenacity in finding more
Ellie Natsis
Ellie Natsis
15:41 07 Jan 21
I have had the best experience at this neurologist's office! For over a year I have been receiving iv treatments here... each month and my nurse, Bobbie is beyond wonderful!! She's so attentive, knowledgeable, caring, and detail oriented. She makes an otherwise uncomfortable experience much more pleasant and definitely puts me at ease! She also helps me with my insurance,ordering this specialty medication and dealing with the ordering process which is no easy feat.Needless to say, she goes above a beyond in every way and I'm so grateful to this office and to Bobbie for all they do for me!read more
Matt Morris
Matt Morris
15:39 07 Jan 21
Let me start by saying that I have been coming here for years. Due to my autoimmune disease, I am in this office... once every three weeks for multiple hours at a time. The office is very clean and the staff very friendly. My only complaint would be there communication via phone. They aren't the best at responding if you leave a voicemail and expect a call back. I understand that this is prob just due to the sheer number of alls they receive daily. What I can say I like the best about the office are the people. Bobby who handles my infusions is great. I never have any issues with her setting up my infusions. She is very quick to reply to messages sent via text and if she were to leave then my whole opinion of the office may change. I also enjoy people like Matt, Lauren, and Jodi. I appreciate all that they do for me and without this team I'm not sure I would be as happy as I am to visit the office as frequently as I have to. Please ensure that these folks are recognized as they are what makes my visit to this office so tolerable :).read more
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