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How to Help Someone with Tourette Syndrome

Sandeep Dhanyamraju MD
Medically reviewed by Sandeep Dhanyamraju
Sandeep Dhanyamraju MD
Medically reviewed by Sandeep Dhanyamraju

Navigating life with Tourette Syndrome (TS) can present a set of challenges. It can be hard for both individuals affected and those around them. Understanding how to help someone with Tourette Syndrome and offering support is crucial. It fosters a positive and inclusive environment. In this guide, we will explore effective ways to assist and be a source of encouragement for individuals with this condition.

Our resource is designed to provide insights and practical tips for friends, family members, educators, and colleagues. You’ll gain a deeper understanding of TS and learn specific strategies. That way you can support those affected and contribute to a more empathetic and accommodating community.

This guide will equip you with the knowledge needed to offer genuine assistance. From encouraging open communication to recognizing the diverse manifestations of TS. Together, we can break down misconceptions surrounding this condition. We want to promote a culture of acceptance and understanding. Discover practical ways to make a positive impact on the lives of those with Tourette Syndrome.

 

How does Tourette Syndrome affect daily life?

Living with Tourette Syndrome brings about a range of problems. They can seriously influence an individual’s daily life. TS is a neurological disorder characterized by repetitive, involuntary movements and vocalizations. These tics can manifest in various forms. They range from subtle eye blinking or throat clearing to more noticeable gestures and vocal outbursts. The nature and severity of tics can vary widely from person to person.

 Understanding how this condition affects daily life is critical for providing support:

  • One aspect of daily life affected by it is social interactions. People may experience social hardships due to the visible and audible nature of their tics. The unpredictability of tics can lead to misunderstandings. It results in social awkwardness or even stigmatization. As a result, they may find it helpful to seek support for Tourette’s from understanding friends, family, and communities. It allows them to navigate social situations more comfortably.
  • Education and employment can also be impacted by this ailment. In academic settings, tics may interfere with concentration and focus. In the workplace, the visible nature of tics may lead to misconceptions about competence or professionalism. Seeking help with Tourette’s can make a significant difference in creating an inclusive environment. They can do it through workplace accommodations or educational support.
  • Daily routines and self-esteem are additional areas influenced by this disorder. Managing tics can be exhausting, both physically and emotionally. It can really disrupt daily routines. Individuals with TS may benefit from developing coping strategies. Also, accessing support for Tourette’s can enhance their ability to handle daily hurdles. Additionally, fostering a positive self-image is a must. Support networks can play a pivotal role in building confidence and resilience.

Accessing appropriate medical care and mental health aid is necessary as well. There is no cure for TS. Yet, various interventions, including behavioral therapy and medication, can help manage symptoms. Healthcare professionals, support groups, and advocacy organizations can be useful.

 

 

Practical Ways to Offer Help with Tourettes

Infographic on helping with Tourette's

Living with Tourette Syndrome (TS) is definitely not the easiest. Yet, the support of friends, family, and the community can make a substantial difference. If you’re wondering how to help someone with Tourette Syndrome, there are practical ways to offer assistance. Grasping the nature of the condition and taking an active approach to providing aid is vital. It can foster an environment that is more welcoming and accommodating.

Educate Close Friends and Family

Providing information about TS to those close to someone with the condition is a must. Understanding the nuances enables friends and family to offer informed emotional support. It promotes compassion and strengthens relationships.

Encourage Open Conversations

Creating a space for open conversations about TS can help people express their feelings and concerns. It can be discussing the challenges they face or sharing their triumphs. Open communication facilitates a supportive atmosphere where emotional needs are acknowledged and addressed.

Offer a Non-Judgmental Ear

Sometimes, people may need someone to listen without judgment. Offering a non-judgmental ear provides emotional relief and reassurance. This form of Tourette Syndrome support reinforces a sense of acceptance.

Help in Educational Settings

Ensuring that educational environments are aware and supportive is paramount. Educators, classmates, and school staff can contribute to a positive experience. They can make necessary accommodations and promote an inclusive atmosphere.

Cultivate Inclusive Social Activities

Promoting inclusive social activities helps people feel integrated and accepted. Encourage diverse social interactions and promote surroundings where differences are celebrated. 

 

Emotional and Social Support for Tourettes

People comforting a person with Tourette Syndrome

The journey with Tourette’s is not just about medical interventions. Emotional and social support play crucial roles in enhancing the overall well-being of people affected by this neurological disorder.

Tourette syndrome support groups offer a valuable space for individuals and their families to connect with others. Those who understand the daily struggles and triumphs associated with this disorder. In these groups, participants share experiences and exchange coping strategies. The power of shared stories and a sense of community can be instrumental in guiding the often misunderstood world of Tourette’s.

Tourette’s is commonly associated with childhood. However, many individuals continue to experience symptoms into adulthood. Managing the complexities of this condition as an adult can be emotionally demanding. Emotional support can be extremely helpful for coping with it. You can try online communities and social media platforms. They offer additional avenues for connecting with others who share similar backgrounds. The digital space provides an opportunity to access support 24/7. It facilitates a sense of belonging and reduces feelings of isolation.

 

What professional support options are available for Tourette Syndrome?

There are many diverse options for specialized assistance in managing Tourette’s symptoms. One of the best people to help with Tourette’s are medical professionals. Neurologists are often the primary point of contact. They can provide diagnostic assessments and prescribe medications when necessary. Also, there’s a frequent coexistence of this ailment with other mental health conditions. Psychiatrists can help to manage anxiety, depression, or obsessive-compulsive disorder (OCD).

Therapists specializing in cognitive behavioral therapy can provide support for Tourette’sas well. A specific form of CBT, ERP is particularly beneficial for those dealing with tics. For people with vocal tics, speech therapists can assist in managing speech patterns. They can improve communication skills and vocal control. Occupational therapists can address issues related to motor skills and coordination.

 

Final Thoughts

Understanding how to help someone with Tourette Syndrome is a compassionate journey. It requires sympathy, education, and active support. We need to familiarize ourselves with the nuances of it and recognize the diverse spectrum of symptoms. Providing help with Tourettes involves listening without judgment. It’s essential to recognize the individual’s background and offer a helping hand when needed. Educating ourselves and those around us promotes a more informed and compassionate community. It breaks down stigmas associated with the disorder. Furthermore, participating in support networks and staying attuned to the latest research empowers us to offer meaningful assistance. As we navigate this collective effort we contribute to the well-being of people with Tourette’s. Also, we create a society that values diversity. How to help someone with Tourette Syndrome becomes a voyage of solidarity, respect, and shared humanity.

 

FAQ

What are the first steps in helping someone with Tourette Syndrome?

Begin by educating yourself about Tourette Syndrome to better understand the condition. Listen openly and nonjudgmentally to the individual’s experiences and concerns. Offer your support and let them know you are there to help.

 

How can I educate others about Tourette Syndrome?

Share accurate information from reputable sources to dispel misconceptions. Encourage open conversations and answer questions people may have. Promote inclusivity by emphasizing that individuals with Tourette’s are unique and capable.

 

Can lifestyle changes help manage Tourette Syndrome symptoms?

Yes, adopting a healthy lifestyle can contribute to symptom management. Regular exercise, stress reduction techniques, and a balanced diet may positively impact symptoms. Collaborate with healthcare professionals to explore personalized lifestyle adjustments.

 

How can family members best support a relative with Tourette Syndrome?

They can educate themselves about Tourette Syndrome to enhance understanding. It’s important to foster open communication and create a supportive, non-judgmental environment. Also, they can collaborate with healthcare professionals to explore treatment options and coping strategies.

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Edward Medina
Edward Medina
15:34 30 Jun 22
Just such an amazing staff that makes you feel like part of their family. I’ve been going there for over 5 years now... and each visit I get the very best care and treatments that I have ever received in the 20+ years that I’ve been dealing with severe debilitating migraines. Since i started seeing them the number of my migraines has dropped from 15-20 a month to 2-3 every 3 month. I highly recommend them …they will change your life!read more
Daneisha Johnson
Daneisha Johnson
22:20 19 May 22
Dr. Askari was very kind and explained everything so I could understand. The other staff were nice as well. I would... have gave 5 stars but I was a little taken aback when I checked in and had to pay 600.00 upfront. I think that should have been discussed in a appointment confirmation call or email just so I could have been prepared.read more
Jean Cooper
Jean Cooper
16:54 29 Apr 22
I love the office staff they are friendly and very helpful. Dr. JODIE is very caring and understanding to your needs... and wants to help you. I will go back. would recommend Dr. Dr. Jodie to other Patients in a heart beat. The team works well together.read more
Linda M
Linda M
19:40 02 Apr 22
I was obviously stressed, needing to see a neurologist. The staff was so patient and Dr. Ansari was so kind. At one... point he told me to relax, we have time, when I was relaying my history of my condition. That helped ease my stress. I have seen 3 other neurologists and he was the only one who performed any assessment tests on my cognitive and physical skills. At one point I couldn't complete two assessments and got upset and cried. I was told, it's OK. That's why you're here. I was truly impressed, and super pleased with the whole experience!read more
Leslie Durham
Leslie Durham
15:05 01 Apr 22
I've been coming here for about 5 years. The staff are ALWAYS friendly and knowledgeable. The Doctors are the absolute... best!! Jodie Moore is always in such a great mood which is a plus when you are already stressed. Highly recommendedread more
Monica Del Bosque
Monica Del Bosque
14:13 25 Mar 22
Since my first post my thoughts have changed here. It's unfortunate. My doctor and PA were great, but the office staff... is horrible. They never call you back when they say they will, they misinform you, they cause you too much stress wondering what's going on, they don't keep you posted. They never answer the phone. At this point I've left four messages in the last week, and I have sent three messages. Twice from their portal and one direct email. No response. My appointment is on Monday morning at 8:30am, no confirmation on my insurance and what's going on. What the heck is going on, this is ridiculous!I've given up... the stress her office staff has put me through is just not worth it. You can do so much better, please clean house, either change out your office staff, or find a way for them to be more efficient please. You have to do something. This is not how you want to run your practice. It leaves a very bad impression on your business.read more
Ron Buckholz
Ron Buckholz
23:32 23 Mar 22
I was actually pleasantly surprised with this visit! It took me a long time to get the appointment scheduled because no... one answers your phones EVER! After a month, I finally got in, and your staff was warm, friendly, and I was totally impressed! I feel like you will take care of my needs!read more
Steve Nabavi
Steve Nabavi
16:28 16 Mar 22
It was a nice visit. Happy staff doing all they can do to comfort the patients in a very calming environment. You ask... me they are earned a big gold star on the fridge. My only complaint they didn't give me any cookies.read more
Katie Lewis
Katie Lewis
16:10 10 Feb 22
Had very positive appointments with Jodie and Dr. Sheth for my migraine care. Jodie was so fast with the injections and... has so much valuable info. I started to feel light headed during checkout and the staff was SO helpful—giving me a chair, water, and taking me into a private room until I felt better. Highly recommend this practice for migraine patients, they know what they’re doing!!read more
Joshua Martinez
Joshua Martinez
16:02 10 Dec 21
I was scheduled to be checked and just want to say that the staff was fantastic. They were kind and helpful. I was... asked many questions related to what was going on and not once did I feel as though I was being brushed off. The front desk staff was especially great in assisting me. I'm scheduled to go back for a mri and am glad that I'll be going there.read more
Isabel Ivy
Isabel Ivy
21:42 03 Nov 21
I had such a good experience with Lone Star Neurology, Brent my MRI Tech was so awesome and made sure I was very... comfortable during the appointment. He gave me ear plugs, a pillow, leg support and blanket, easiest MRI ever lol 🤣 My 72 hour EEG nurse Amanda was also so awesome. She made sure I was take care of over the 3 days and took her time with the electrodes to make sure it was comfortable for me! Paige was also a huge help in answering all my questions when it came to my test results, and letting me know her honest opinions about how I should go forth with my treatment.read more
Leslie Luce
Leslie Luce
17:37 20 Oct 21
The professionalism and want to help attitude of this office was present from the moment I contacted them. The follow... up and follow through as well as their willingness to find a way to schedule my dad was above and beyond. We visited two offices in the same day with the same experience. I am appreciative of this—we spend a lot of time with doctors and this was top notch start to finish.read more
robert Parker
robert Parker
16:38 16 Apr 21
I love going to this office. The staff is friendly and helpful. The doctor is great. I am getting the best... neurological tests and treatment I have ever had. The only reason I did not give them a 5 star rating is because it is impossible to reach a live person at the office to reschedule appointments. Every time I have tried to get through to the office it says all people are busy and I am sent to a voicemail. If they could get their phone answering fixed, I would give them a strong 5 stars.read more
MaryAnn Hornbaker
MaryAnn Hornbaker
00:26 25 Feb 21
Dr. Harney is an excellent Dr. I found him friendly , personable and thorough. I evidently am an unusual case. ... Therefore he spent a Hugh amount of time educating me. He even gave me literature to further explain my condition and how to follow up. This is something you rarely get from your doctors. So I am more than please with my doctor and his staff.read more
Roger Arguello
Roger Arguello
03:05 29 Jan 21
Always courteous, professional. The staff is very friendly and always work with you to find the best appointment time.... The care team has been great. Always taking the time to listen to your concerns and to find the best treatment.read more
Margaret Rowland
Margaret Rowland
01:12 27 Jan 21
I have been a patient at Lone Star Neurology for several years. Now both my adult daughters also are patients there. I... love Jodie. She is always so prompt whether it is a teleamed call are a visit in the office. She takes the time to explain everything to me and answers all my questions. I am so blessed to have Jodie as my doctor.read more
Susan Miller
Susan Miller
03:01 13 Jan 21
My husband had an accident 5 years ago and Lone Star Neurology has been such a blessing to us with my husbands care.... Jodie Moore is his provider and she is amazing! Jodie is very knowledgeable, caring, and thorough. She takes her time with you, making sure your needs are met and she is happy to answer any questions you may have. Lone Star Neurology’s patients are very lucky to have Jodie providing their care. Thank you Lone Star Neurology and especially Jodie for everything you have done for us. Jodie, you are the best!read more
Windalyn C
Windalyn C
01:32 09 Jan 21
Jodie is wonderful. She is very caring and knowledgeable. I have been to over a dozen neurologists, and none were able... to help me as much as they have here. Thanks!read more
Katie Kordel
Katie Kordel
00:40 09 Jan 21
Jodi Moore, nurse practitioner, is amazing. I have suffered from frequent, debilitating headaches for almost 20 years.... She has provided the best proactive and responsive care I have ever received. My quality of life has been greatly improved by her caring approach and tenacity in finding solutions.read more
Ellie Natsis
Ellie Natsis
15:41 07 Jan 21
I have had the best experience at this neurologist's office! For over a year I have been receiving iv treatments here... each month and my nurse, Bobbie is beyond wonderful!! She's so attentive, knowledgeable, caring, and detail oriented. She makes an otherwise uncomfortable experience much more pleasant and definitely puts me at ease! She also helps me with my insurance,ordering this specialty medication and dealing with the ordering process which is no easy feat.Needless to say, she goes above a beyond in every way and I'm so grateful to this office and to Bobbie for all they do for me!read more
Matt Morris
Matt Morris
15:39 07 Jan 21
Let me start by saying that I have been coming here for years. Due to my autoimmune disease, I am in this office... once every three weeks for multiple hours at a time. The office is very clean and the staff very friendly. My only complaint would be there communication via phone. They aren't the best at responding if you leave a voicemail and expect a call back. I understand that this is prob just due to the sheer number of alls they receive daily. What I can say I like the best about the office are the people. Bobby who handles my infusions is great. I never have any issues with her setting up my infusions. She is very quick to reply to messages sent via text and if she were to leave then my whole opinion of the office may change. I also enjoy people like Matt, Lauren, and Jodi. I appreciate all that they do for me and without this team I'm not sure I would be as happy as I am to visit the office as frequently as I have to. Please ensure that these folks are recognized as they are what makes my visit to this office so tolerable :).read more
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