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Strategy for Living with Dystonia

Medically reviewed by Sandeep Dhanyamraju
Medically reviewed by Sandeep Dhanyamraju

Life with dystonia can be difficult and time-consuming. First, the disease frightens people, isolating them from many. But people with dystonia don’t have to be alone.

Dystonia is a neurological movement disorder. It causes involuntary contractions, tremors, and spasms. The disease may cause pain or make it difficult to perform everyday activities. 

If you have recently gotten a diagnosis of dystonia or are just learning about the condition, you may feel overwhelmed at having to deal with it on your own. The good news is that there are strategies that can help make life easier for you with dystonia

In this article, we’ll cover some methods of coping with dystonia. We will also give helpful tips on how to live more comfortably with the condition.

 

Find a Good Specialist for Dystonia Treatment

Find a Good Specialist for Dystonia TreatmentLet’s start by saying that people with dystonia have the right to a happy, fulfilling life. It is a crucial element of living with this neurological disorder. If you have dystonia, start your new life by seeing a competent specialist.

Finding the right specialist can make a big difference in your treatment regimen. With the right doctor, you’ll cut your symptoms faster. Consult with knowledgeable doctors who specialize in neurology. 

You need to find a competent doctor. Find out which hospitals or clinics treat your neurological disorder. Trust us; you can cure dystonia.

There should be enough time between consultations. So you will digest the information you receive and decide whether it applies to your case. Make sure that the specialist understands your condition and your goals for recovery. Does the doctor have the necessary knowledge? This knowledge is invaluable in treating a disease like dystonia.

 

Choose the Kind of Therapy for Dystonia

Choose the Kind of Therapy for DystoniaFortunately, for people with dystonia, there are many therapy options. You can start with medications such as Botox. And you can end with psychology. The doctor will find ways for everyone to help relieve symptoms. He will help you improve your quality of life with dystonia. But medical treatment only a doctor can prescribe!

You need to find a therapist who specializes in treating dystonia. You need them to have experience in the field. You will be able to discuss your symptoms and goals with your therapist. It will make you feel most comfortable. 

The therapist may prescribe a combination of several types of therapy. But it depends on each case of dystonia. Combining different treatments will help restore mental health with dystonia

Also, choosing a therapist who takes an integrative approach to treatment will provide flexibility in seeking treatment. They will find the treatment that works best for each case.

 

Do Exercises Daily

Do Exercises DailyLiving with dystonia can be difficult and uncomfortable. But there are methods to help you live more efficiently. First, we’re talking about exercise.

You need a regular exercise program tailored to your needs. That way, you can reduce the severity of your symptoms and improve your quality of life. 

Exercise will help prevent muscle stiffness and increase endurance. It will provide a higher level of comfort throughout the day. 

You should talk to an experienced doctor to create a successful exercise strategy. They will be able to determine your goals and capabilities. With his guidance, you can choose exercises that fit your diagnosis. In doing so, you will set realistic expectations for their performance. 

Regular exercise is not only beneficial for those living with dystonia. It is an essential tool for managing the condition over time.

 

Find Support for Dystonia Patients

Find Support for Dystonia PatientsDo you want to know how to cure dystonia? There are strategies to help patients better manage their symptoms. One such method is finding support among peers with the same or similar condition. 

Some organizations provide helpful information. They allow communication with peers and can offer valuable resources for treatment choices.

 

An example can be:

They have a robust support system among patients with dystonia. It allows you to get emotional support during difficult times. 

Finally, belonging to a supportive community will help reduce feelings of isolation. You will provide yourself with motivation and encouragement to continue treatment. 

Identifying such a community? Connect with them and talk about your life with dystonia. You will be of great benefit to others with this problem.

 

Take Care of Your Mental Health

Take Care of Your Mental HealthYou need to take care of your mental health with dystonia. It will help you better manage your condition. Studies have shown that mental health problems can affect the severity of your symptoms. 

 

A comprehensive strategy for living with dystonia includes:

  • Being active mentally and physically;
  • Participation in community activities. For example, volunteering or attending support groups;
  • Regular medical checkups;
  • Controlling diet and nutrition;
  • Finding healthy ways to reduce stress;
  • Seeking help from mental health professionals when needed;
  • Developing positive coping strategies for dealing with stress. 

 

It’s important to remember that dystonia doesn’t define you. You must stay focused on the things that bring joy and purpose to your life.

 

Do Things You Enjoy

Do Things You EnjoyA diagnosis of dystonia can bring frustration to your life. But this is not the time to despair! Being strategic can help people find creative ways to continue to enjoy the things they love. 

Focus on activities that please you. Put them at the center of your life with dystonia. It will help you achieve personal goals, take responsibility, and find joy. 

Alas, there is no one-size-fits-all solution. But finding pleasurable experiences can be an effective way to treat dystonia. Patients need to reach out to medical professionals. Also, you can turn to support groups, relatives, or friends. They may be the ones who can give you ideas about how best to reach your goals. And then, you will find the answer to how to cure dystonia.

 

Listen to Your Body

Listen to Your BodyOne of the best strategies for living with dystonia is to listen to your body. It means paying attention to the signals and sensations in your body. 

By listening to your body, you will better understand yourself. You will identify what activities are causing you discomfort. Then you will take steps to avoid or reduce the symptoms.

 

These may include:

  • Changing your diet.
  • Taking regular breaks during exercise.
  • Giving yourself plenty of rest. 

Are you ready to take action when your body tells you something is wrong? These steps will help you relieve someone with dystonia. 

Feeling your body telling you something is wrong? Take action, and you will ease the condition.

Awareness is critical in life with dystonia. So make self-care a priority. Listen to what your body needs every day. Then you can live a successful life coping with your condition.

 

 Accept Awkward Social Situations

 Accept Awkward Social SituationsLiving with dystonia can make many social situations uncomfortable and awkward. But the key to success is to accept moments of discomfort. 

Yes, you need time to adjust. But taking the initiative, engaging in conversations, and finding humor in difficult moments can go a long way toward helping people with this disorder feel more confident and comfortable in society. 

Be open with communication and a positive attitude. You will be able to accept difficult social situations. It is how you will create friendships and human connections. They will ultimately bring joy to people with dystonia.

 

Carefully Explore Complementary Therapies

Carefully Explore Complementary TherapiesPeople living with the condition can turn to any remedy. After all, people want to believe that dystonia can be cured

 

Traditional medicine should always remain the primary treatment. But you can explore different therapies.

 

 

These include:

  • Acupuncture;
  • Dietary supplements;
  • Massage;
  • Relaxation techniques such as yoga or tai chi;
  • Naturopathy. 

It is essential to discuss these methods with your doctor before using them. This way, you will ensure safe and effective results. 

You should also research the potential risks associated with it. This information will help you make your decision.

 

Stay as Active and Social as Possible

Stay as Active and Social as PossibleStay as active and social as possible despite the diagnosis of dystonia. You can achieve this: 

  • By joining an online support group;
  • Making regular contact with a friend or family member;
  • Engaging in physical activity within the limitations that dystonia symptoms may impose. 

 

It is important to remember that while participation in physical activity is challenging, it is essential for maintaining

  • Physical strength;
  • Emotional stability;
  • Well-being. 

The strength to be active may be gone. It is how you find yourself isolated. Remember that staying active and participating in social life are effective strategies for overcoming the effects of dystonia on daily life.

 

Lone Star Neurology Clinic

If you or your loved ones have signs of dystonia, you need to see a doctor for a diagnosis. The team of our neurological clinic employs the best, highly qualified doctors. Every day they help many patients stabilize their conditions. Also, they cure many neurological diseases, if possible. With the help of modern equipment, we carry out accurate diagnostics. It allows us to identify diseases early. Sign up for a consultation with our neurologist right now by phone: 214-619-1910.

 

FAQs:

How to cure dystonia?

There is no cure for dystonia. But people with the condition can manage their symptoms with various treatments. These may include medications and physical therapy.

Can you live everyday life with dystonia?

Yes, people with dystonia can live a whole and everyday life. Finding the right treatment plan for individual needs and lifestyle is essential. Also, people should make sure to stay socially connected.

Is dystonia considered a disability?

Yes, dystonia is a disability because it affects people’s ability to move a certain way. They qualify for disability benefits from the Social Security Administration.

How does dystonia affect daily life?

Dystonia can affect people’s daily life in many ways. Some people may experience difficulty with activities of daily living, such as eating and dressing. In contrast, others may have trouble doing tasks that need fine motor coordination, such as writing or typing.

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Edward Medina
Edward Medina
15:34 30 Jun 22
Just such an amazing staff that makes you feel like part of their family. I’ve been going there for over 5 years now... and each visit I get the very best care and treatments that I have ever received in the 20+ years that I’ve been dealing with severe debilitating migraines. Since i started seeing them the number of my migraines has dropped from 15-20 a month to 2-3 every 3 month. I highly recommend them …they will change your life!read more
Daneisha Johnson
Daneisha Johnson
22:20 19 May 22
Dr. Askari was very kind and explained everything so I could understand. The other staff were nice as well. I would... have gave 5 stars but I was a little taken aback when I checked in and had to pay 600.00 upfront. I think that should have been discussed in a appointment confirmation call or email just so I could have been prepared.read more
Jean Cooper
Jean Cooper
16:54 29 Apr 22
I love the office staff they are friendly and very helpful. Dr. JODIE is very caring and understanding to your needs... and wants to help you. I will go back. would recommend Dr. Dr. Jodie to other Patients in a heart beat. The team works well together.read more
Linda M
Linda M
19:40 02 Apr 22
I was obviously stressed, needing to see a neurologist. The staff was so patient and Dr. Ansari was so kind. At one... point he told me to relax, we have time, when I was relaying my history of my condition. That helped ease my stress. I have seen 3 other neurologists and he was the only one who performed any assessment tests on my cognitive and physical skills. At one point I couldn't complete two assessments and got upset and cried. I was told, it's OK. That's why you're here. I was truly impressed, and super pleased with the whole experience!read more
Leslie Durham
Leslie Durham
15:05 01 Apr 22
I've been coming here for about 5 years. The staff are ALWAYS friendly and knowledgeable. The Doctors are the absolute... best!! Jodie Moore is always in such a great mood which is a plus when you are already stressed. Highly recommendedread more
Monica Del Bosque
Monica Del Bosque
14:13 25 Mar 22
Since my first post my thoughts have changed here. It's unfortunate. My doctor and PA were great, but the office staff... is horrible. They never call you back when they say they will, they misinform you, they cause you too much stress wondering what's going on, they don't keep you posted. They never answer the phone. At this point I've left four messages in the last week, and I have sent three messages. Twice from their portal and one direct email. No response. My appointment is on Monday morning at 8:30am, no confirmation on my insurance and what's going on. What the heck is going on, this is ridiculous!I've given up... the stress her office staff has put me through is just not worth it. You can do so much better, please clean house, either change out your office staff, or find a way for them to be more efficient please. You have to do something. This is not how you want to run your practice. It leaves a very bad impression on your business.read more
Ron Buckholz
Ron Buckholz
23:32 23 Mar 22
I was actually pleasantly surprised with this visit! It took me a long time to get the appointment scheduled because no... one answers your phones EVER! After a month, I finally got in, and your staff was warm, friendly, and I was totally impressed! I feel like you will take care of my needs!read more
Steve Nabavi
Steve Nabavi
16:28 16 Mar 22
It was a nice visit. Happy staff doing all they can do to comfort the patients in a very calming environment. You ask... me they are earned a big gold star on the fridge. My only complaint they didn't give me any cookies.read more
Katie Lewis
Katie Lewis
16:10 10 Feb 22
Had very positive appointments with Jodie and Dr. Sheth for my migraine care. Jodie was so fast with the injections and... has so much valuable info. I started to feel light headed during checkout and the staff was SO helpful—giving me a chair, water, and taking me into a private room until I felt better. Highly recommend this practice for migraine patients, they know what they’re doing!!read more
Joshua Martinez
Joshua Martinez
16:02 10 Dec 21
I was scheduled to be checked and just want to say that the staff was fantastic. They were kind and helpful. I was... asked many questions related to what was going on and not once did I feel as though I was being brushed off. The front desk staff was especially great in assisting me. I'm scheduled to go back for a mri and am glad that I'll be going there.read more
Isabel Ivy
Isabel Ivy
21:42 03 Nov 21
I had such a good experience with Lone Star Neurology, Brent my MRI Tech was so awesome and made sure I was very... comfortable during the appointment. He gave me ear plugs, a pillow, leg support and blanket, easiest MRI ever lol 🤣 My 72 hour EEG nurse Amanda was also so awesome. She made sure I was take care of over the 3 days and took her time with the electrodes to make sure it was comfortable for me! Paige was also a huge help in answering all my questions when it came to my test results, and letting me know her honest opinions about how I should go forth with my treatment.read more
Leslie Luce
Leslie Luce
17:37 20 Oct 21
The professionalism and want to help attitude of this office was present from the moment I contacted them. The follow... up and follow through as well as their willingness to find a way to schedule my dad was above and beyond. We visited two offices in the same day with the same experience. I am appreciative of this—we spend a lot of time with doctors and this was top notch start to finish.read more
robert Parker
robert Parker
16:38 16 Apr 21
I love going to this office. The staff is friendly and helpful. The doctor is great. I am getting the best... neurological tests and treatment I have ever had. The only reason I did not give them a 5 star rating is because it is impossible to reach a live person at the office to reschedule appointments. Every time I have tried to get through to the office it says all people are busy and I am sent to a voicemail. If they could get their phone answering fixed, I would give them a strong 5 stars.read more
MaryAnn Hornbaker
MaryAnn Hornbaker
00:26 25 Feb 21
Dr. Harney is an excellent Dr. I found him friendly , personable and thorough. I evidently am an unusual case. ... Therefore he spent a Hugh amount of time educating me. He even gave me literature to further explain my condition and how to follow up. This is something you rarely get from your doctors. So I am more than please with my doctor and his staff.read more
Roger Arguello
Roger Arguello
03:05 29 Jan 21
Always courteous, professional. The staff is very friendly and always work with you to find the best appointment time.... The care team has been great. Always taking the time to listen to your concerns and to find the best treatment.read more
Margaret Rowland
Margaret Rowland
01:12 27 Jan 21
I have been a patient at Lone Star Neurology for several years. Now both my adult daughters also are patients there. I... love Jodie. She is always so prompt whether it is a teleamed call are a visit in the office. She takes the time to explain everything to me and answers all my questions. I am so blessed to have Jodie as my doctor.read more
Susan Miller
Susan Miller
03:01 13 Jan 21
My husband had an accident 5 years ago and Lone Star Neurology has been such a blessing to us with my husbands care.... Jodie Moore is his provider and she is amazing! Jodie is very knowledgeable, caring, and thorough. She takes her time with you, making sure your needs are met and she is happy to answer any questions you may have. Lone Star Neurology’s patients are very lucky to have Jodie providing their care. Thank you Lone Star Neurology and especially Jodie for everything you have done for us. Jodie, you are the best!read more
Windalyn C
Windalyn C
01:32 09 Jan 21
Jodie is wonderful. She is very caring and knowledgeable. I have been to over a dozen neurologists, and none were able... to help me as much as they have here. Thanks!read more
Katie Kordel
Katie Kordel
00:40 09 Jan 21
Jodi Moore, nurse practitioner, is amazing. I have suffered from frequent, debilitating headaches for almost 20 years.... She has provided the best proactive and responsive care I have ever received. My quality of life has been greatly improved by her caring approach and tenacity in finding solutions.read more
Ellie Natsis
Ellie Natsis
15:41 07 Jan 21
I have had the best experience at this neurologist's office! For over a year I have been receiving iv treatments here... each month and my nurse, Bobbie is beyond wonderful!! She's so attentive, knowledgeable, caring, and detail oriented. She makes an otherwise uncomfortable experience much more pleasant and definitely puts me at ease! She also helps me with my insurance,ordering this specialty medication and dealing with the ordering process which is no easy feat.Needless to say, she goes above a beyond in every way and I'm so grateful to this office and to Bobbie for all they do for me!read more
Matt Morris
Matt Morris
15:39 07 Jan 21
Let me start by saying that I have been coming here for years. Due to my autoimmune disease, I am in this office... once every three weeks for multiple hours at a time. The office is very clean and the staff very friendly. My only complaint would be there communication via phone. They aren't the best at responding if you leave a voicemail and expect a call back. I understand that this is prob just due to the sheer number of alls they receive daily. What I can say I like the best about the office are the people. Bobby who handles my infusions is great. I never have any issues with her setting up my infusions. She is very quick to reply to messages sent via text and if she were to leave then my whole opinion of the office may change. I also enjoy people like Matt, Lauren, and Jodi. I appreciate all that they do for me and without this team I'm not sure I would be as happy as I am to visit the office as frequently as I have to. Please ensure that these folks are recognized as they are what makes my visit to this office so tolerable :).read more
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