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Living With Epilepsy: Diagnosis, Treatment, and Everyday Tips

Medically reviewed by Hakam Asaad
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Medically reviewed by Hakam Asaad

Epilepsy is a condition that affects millions of people around the world. However, it doesn’t have to take over your life. With the right knowledge, tools, and support, you can: 

  • Manage your symptoms
  • Reduce seizures
  • Live with confidence

This article is your guide to understanding epilepsy diagnosis, mastering seizure management, and exploring treatment options. These can make a real difference. 

Whether you’re newly diagnosed, helping a loved one, or looking for practical lifestyle tips, this guide will help. We’ll walk you through each step with clear, actionable advice. You’ll also discover support resources and the importance of patient education. This will empower you to live well while living with epilepsy.

Understanding the Diagnosis: What to Expect and How to Prepare

An epilepsy diagnosis is the foundation for managing the condition effectively. It’s normal to feel nervous about the process. However, understanding what’s involved can help you feel more prepared and less anxious. Doctors use a combination of your medical history, symptom descriptions, and specialized tests to confirm epilepsy. Common diagnostic tools include EEGs. They measure electrical activity in your brain. Also, doctors use imaging tests like MRI or CT scans to look for structural causes of seizures. These tests are safe, non-invasive, and provide clear answers.

The epilepsy diagnosis process is like a roadmap to better health. It helps your doctor understand what’s happening in your brain. And they can create a plan tailored to your needs. By preparing for appointments and asking the right questions, you can play an active role in your care. This section will break down the warning symptoms to watch for and the steps involved in getting a diagnosis.

Signs You Shouldn’t Ignore – When to Seek a Medical Opinion

Here are some key indicators that you should seek treatment options:

  • Unexplained seizures or convulsions. Sudden, uncontrollable shaking, jerking, or muscle spasms. These usually happen without a clear cause.
  • Loss of awareness or “spacing out”. Brief moments where you stare blankly, lose track of time, or feel disconnected from your surroundings.
  • Unusual sensations. Experiencing strange smells, tastes, tingling, or sudden intense emotions. These usually seem out of place.
  • Repeated fainting or blackouts. Falling unconscious. This is especially concerning if it’s paired with muscle twitching or confusion afterward.
  • Sudden falls or collapses. Dropping to the ground without warning. This can happen even if you don’t lose consciousness.
  • Muscle stiffness or rigidity. Unexplained episodes where your body becomes stiff or rigid. These episodes are sometimes followed by jerking movements.

These symptoms don’t always mean epilepsy. However, they’re worth checking out. Early action can lead to a faster epilepsy diagnosis and better seizure management. It can give you peace of mind and a clear path forward.

The Diagnostic Process Explained in Simple Steps

The journey to an epilepsy diagnosis is like putting together a puzzle. Your doctor gathers information from your symptoms, medical history, and tests to create a complete picture. Here’s a step-by-step look at what happens:

    • Initial Consultation. Your doctor will ask detailed questions about your symptoms. For example, how often they occur, what they feel like, and what seems to trigger them. They’ll also ask about your medical history, family history of seizures, and lifestyle factors. Be honest and specific – every detail helps.
    • Physical and Neurological Exam. Before discussing treatment options, a neurologist will check your reflexes, coordination, balance, and cognitive abilities to assess your brain function. This exam is quick and painless.
  • Diagnostic Tests:
    • EEG (Electroencephalogram). Small sensors are placed on your scalp to record electrical activity in your brain. It takes about 30-60 minutes. And it can show patterns linked to seizures. Sometimes, a longer EEG (like a 24-hour monitoring) is needed.
    • MRI or CT Scan. These imaging tests create detailed pictures of your brain to look for abnormalities. For example, tumors, scar tissue, or structural issues that might cause seizures.
    • Blood Tests. These rule out other conditions. For example, low blood sugar or infections. These could mimic epilepsy symptoms.
  • Review and Diagnosis. After analyzing the results, your doctor will confirm whether you have epilepsy and determine the type of seizures. They’ll explain what this means and discuss next steps.

Being proactive during the diagnostic process helps you feel more in control. And it ensures your doctor has the info needed to create an effective plan for living with epilepsy.

Treatment Options That Make a Difference

Once you have a diagnosis, exploring treatment options is the next step. The goal is to reduce or prevent seizures while keeping side effects to a minimum. Treatments are highly individualized. And your doctor will work with you to find the best approach. It’s based on your seizure type, health, and lifestyle. Here’s an overview of the most common treatment options:

  • Anti-Seizure Medications (ASMs). These are the most common treatments. They are used by about 70% of people with epilepsy to control seizures. Medications like levetiracetam, lamotrigine, or carbamazepine help stabilize electrical activity in the brain. Your doctor may try different drugs or adjust dosages to find the right fit. Regular follow-ups are key to monitor effectiveness and side effects.
  • Surgery. When medications don’t work, surgery might be an option. Procedures like focal resection or laser ablation can be effective for some patients. Surgery is carefully considered. And it’s typically recommended only after thorough testing.
  • Dietary Therapy. As a treatment option, the ketogenic diet, a high-fat, low-carbohydrate plan, has been shown to reduce seizures, particularly in children. Adults may benefit from a modified Atkins diet, which is less restrictive but still effective for some. A dietitian can help you follow these plans safely.
  • Neurostimulation Devices. Devices like vagus nerve stimulators (VNS), responsive neurostimulation (RNS), or deep brain stimulation (DBS) use electrical impulses to regulate brain activity. They’re often considered for people whose seizures don’t respond to medications.
  • Complementary Therapies. While not a replacement for medical treatment, therapies like stress management, acupuncture, or biofeedback can support overall well-being. And they usually complement other treatment options.

Managing Seizures in Real Life – What Every Patient Should Know

Building-a-Life

Effective seizure management is about being prepared, staying safe, and feeling confident in your daily life. A seizure action plan is a critical tool. It’s a written guide that outlines what to do if a seizure happens, who to call, and how to keep you safe. Share this plan with family, friends, coworkers, or teachers. This way, they’re ready to help if needed. You can work with your doctor or a nurse to create one tailored to you.

If a seizure occurs, here’s what those around you should do:

  • Stay calm and time the seizure. Most seizures stop within 1-3 minutes.
  • Clear the area of sharp objects and cushion their head with something soft, like a jacket or pillow.
  • Turn them onto their side to keep airways clear, especially if they’re unconscious.
  • Don’t hold them down or put anything in your mouth. This is a common myth and can cause harm.
  • Call emergency services if the seizure lasts longer than 5 minutes. The same if another seizure starts right away or if they’re injured or having trouble breathing.

For those living with epilepsy, preparation is key. Carry a medical ID bracelet or card that notes your condition and emergency contacts. If you have frequent seizures, consider a seizure alert device. It notifies others if a seizure occurs. By planning ahead, you can reduce stress and focus on living fully.

Practical Tips for Reducing Seizure Triggers

Certain factors can increase the chance of a seizure. You can’t eliminate every trigger. However, these lifestyle tips can help you minimize them:

  • Get Enough Sleep. Lack of sleep is a major trigger for many people. Aim for 7-9 hours of restful sleep each night. Create a relaxing bedtime routine, like reading or listening to calm music. And avoid screens an hour before bed.
  • Manage Stress. High stress levels can spark seizures. Try mindfulness techniques, such as deep breathing (inhale for 4 seconds, exhale for 4 seconds), meditation, or gentle yoga. Even a 10-minute walk can help you unwind.
  • Limit Alcohol and Avoid Recreational Drugs. Alcohol and drugs can interfere with medications and lower your seizure threshold. If you drink, stick to small amounts. And discuss limits with your doctor.
  • Stay Hydrated and Eat Regularly. Dehydration or skipped meals can trigger seizures. As a lifestyle tip, carry a water bottle. And aim for balanced meals with protein, healthy fats, and complex carbs.
  • Avoid Flashing Lights or Patterns. For those with photosensitive epilepsy, bright or flashing lights can be a trigger. Wear polarized sunglasses or take breaks from screens.
  • Exercise Safely. Physical activity boosts mood and health. However, choose low-risk activities like walking, swimming, or yoga. Avoid exercising alone if your seizures are uncontrolled. And always check with your doctor.

How to Track Your Seizures and Medication Side Effects

Tracking your seizures and medication effects is a powerful part of patient education. A seizure diary or app helps you identify patterns. They help monitor treatment effectiveness and communicate clearly with your doctor. Here’s what to include in your log:

  • Date and Time. When did the seizure happen? Was it morning, afternoon, or night?
  • Duration. How long did the seizure last? Time it if possible.
  • Triggers. Were you stressed, tired, hungry, or exposed to flashing lights?
  • Symptoms. What did you feel before (aura), during, and after the seizure? For example, did you feel dizzy, confused, or tired afterward?
  • Medication Details. Note the time and dose of your medications. Also note any side effects like drowsiness, nausea, or trouble focusing.

Digital tools like Seizure Tracker, MyEpilepsyDiary, or Epsy make logging easy. And they allow you to share reports with your doctor. For example, you might notice seizures happen more often when you skip breakfast or stay up late. Sharing this data during appointments can help your doctor adjust your treatments for better seizure management. If you prefer paper, a simple notebook works just as well. Just keep it consistent and bring it to your visits.

Building a Life Beyond Epilepsy – Wellness and Daily Living Tips

Treatment-Options

Living with epilepsy doesn’t mean giving up on your goals or passions. With the right strategies, you can build a fulfilling life. At the same time, you can stay safe and confident. Focus on wellness, community, and practical adjustments. Here are some ways to make it happen:

  • Stay Active. Exercise is great for physical and mental health. Walking, swimming, cycling, or yoga are low-risk and boost your mood. For example, a 20-minute walk each day can reduce stress and improve sleep. Always check with your doctor to ensure activities are safe. This is especially important if seizures are frequent.
  • Support Your Mental Health. Epilepsy can sometimes bring feelings of anxiety, depression, or isolation. Talking to a therapist or counselor can help you process these emotions. Journaling or creative outlets like drawing can also be therapeutic. For instance, writing down three things you’re grateful for each day can shift your mindset.
  • Build a Support Network. Share your diagnosis with trusted friends, family, or coworkers. Educate them about epilepsy to reduce stigma. Explain that it’s a medical condition, not something to fear. Support resources like the Epilepsy Foundation, Epilepsy Action, or local support groups offer online forums, helplines, and in-person meetings where you can connect with others who understand.
  • Pursue Hobbies and Goals. Whether you love painting, gardening, or learning new skills, keep doing what makes you happy. Adapt activities for safety. For example, if you enjoy cooking, use a microwave or electric stove, rather than open flames if seizures are unpredictable. Set small, achievable goals. For example, learning one new recipe a month.
  • Plan for Safety. Wear a medical ID bracelet or necklace that lists your condition and emergency contacts. If you live alone, consider a seizure alert device. It detects unusual movements and notifies a caregiver or emergency services. For example, devices like Embrace2 or SmartWatch can provide peace of mind. Let key people in your life know your seizure action plan.

Patient education is the cornerstone of thriving with epilepsy. Learn about your condition through reliable sources like the Epilepsy Foundation website. Or ask your doctor for recommended reading. Attend epilepsy workshops or webinars to stay informed about new treatments. Connecting with support resources can also make a big difference. Whether it’s a local support group or an online community, sharing experiences with others can help you feel less alone.

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Lone Star Neurology
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Edward Medina
Edward Medina
15:34 30 Jun 22
Just such an amazing staff that makes you feel like part of their family. I’ve been going there for over 5 years now... and each visit I get the very best care and treatments that I have ever received in the 20+ years that I’ve been dealing with severe debilitating migraines. Since i started seeing them the number of my migraines has dropped from 15-20 a month to 2-3 every 3 month. I highly recommend them …they will change your life!read more
Daneisha Johnson
Daneisha Johnson
22:20 19 May 22
Dr. Askari was very kind and explained everything so I could understand. The other staff were nice as well. I would... have gave 5 stars but I was a little taken aback when I checked in and had to pay 600.00 upfront. I think that should have been discussed in a appointment confirmation call or email just so I could have been prepared.read more
Jean Cooper
Jean Cooper
16:54 29 Apr 22
I love the office staff they are friendly and very helpful. Dr. JODIE is very caring and understanding to your needs... and wants to help you. I will go back. would recommend Dr. Dr. Jodie to other Patients in a heart beat. The team works well together.read more
Linda M
Linda M
19:40 02 Apr 22
I was obviously stressed, needing to see a neurologist. The staff was so patient and Dr. Ansari was so kind. At one... point he told me to relax, we have time, when I was relaying my history of my condition. That helped ease my stress. I have seen 3 other neurologists and he was the only one who performed any assessment tests on my cognitive and physical skills. At one point I couldn't complete two assessments and got upset and cried. I was told, it's OK. That's why you're here. I was truly impressed, and super pleased with the whole experience!read more
Leslie Durham
Leslie Durham
15:05 01 Apr 22
I've been coming here for about 5 years. The staff are ALWAYS friendly and knowledgeable. The Doctors are the absolute... best!! Jodie Moore is always in such a great mood which is a plus when you are already stressed. Highly recommendedread more
Monica Del Bosque
Monica Del Bosque
14:13 25 Mar 22
Since my first post my thoughts have changed here. It's unfortunate. My doctor and PA were great, but the office staff... is horrible. They never call you back when they say they will, they misinform you, they cause you too much stress wondering what's going on, they don't keep you posted. They never answer the phone. At this point I've left four messages in the last week, and I have sent three messages. Twice from their portal and one direct email. No response. My appointment is on Monday morning at 8:30am, no confirmation on my insurance and what's going on. What the heck is going on, this is ridiculous!I've given up... the stress her office staff has put me through is just not worth it. You can do so much better, please clean house, either change out your office staff, or find a way for them to be more efficient please. You have to do something. This is not how you want to run your practice. It leaves a very bad impression on your business.read more
Ron Buckholz
Ron Buckholz
23:32 23 Mar 22
I was actually pleasantly surprised with this visit! It took me a long time to get the appointment scheduled because no... one answers your phones EVER! After a month, I finally got in, and your staff was warm, friendly, and I was totally impressed! I feel like you will take care of my needs!read more
Steve Nabavi
Steve Nabavi
16:28 16 Mar 22
It was a nice visit. Happy staff doing all they can do to comfort the patients in a very calming environment. You ask... me they are earned a big gold star on the fridge. My only complaint they didn't give me any cookies.read more
Katie Lewis
Katie Lewis
16:10 10 Feb 22
Had very positive appointments with Jodie and Dr. Sheth for my migraine care. Jodie was so fast with the injections and... has so much valuable info. I started to feel light headed during checkout and the staff was SO helpful—giving me a chair, water, and taking me into a private room until I felt better. Highly recommend this practice for migraine patients, they know what they’re doing!!read more
Joshua Martinez
Joshua Martinez
16:02 10 Dec 21
I was scheduled to be checked and just want to say that the staff was fantastic. They were kind and helpful. I was... asked many questions related to what was going on and not once did I feel as though I was being brushed off. The front desk staff was especially great in assisting me. I'm scheduled to go back for a mri and am glad that I'll be going there.read more
Isabel Ivy
Isabel Ivy
21:42 03 Nov 21
I had such a good experience with Lone Star Neurology, Brent my MRI Tech was so awesome and made sure I was very... comfortable during the appointment. He gave me ear plugs, a pillow, leg support and blanket, easiest MRI ever lol 🤣 My 72 hour EEG nurse Amanda was also so awesome. She made sure I was take care of over the 3 days and took her time with the electrodes to make sure it was comfortable for me! Paige was also a huge help in answering all my questions when it came to my test results, and letting me know her honest opinions about how I should go forth with my treatment.read more
Leslie Luce
Leslie Luce
17:37 20 Oct 21
The professionalism and want to help attitude of this office was present from the moment I contacted them. The follow... up and follow through as well as their willingness to find a way to schedule my dad was above and beyond. We visited two offices in the same day with the same experience. I am appreciative of this—we spend a lot of time with doctors and this was top notch start to finish.read more
robert Parker
robert Parker
16:38 16 Apr 21
I love going to this office. The staff is friendly and helpful. The doctor is great. I am getting the best... neurological tests and treatment I have ever had. The only reason I did not give them a 5 star rating is because it is impossible to reach a live person at the office to reschedule appointments. Every time I have tried to get through to the office it says all people are busy and I am sent to a voicemail. If they could get their phone answering fixed, I would give them a strong 5 stars.read more
MaryAnn Hornbaker
MaryAnn Hornbaker
00:26 25 Feb 21
Dr. Harney is an excellent Dr. I found him friendly , personable and thorough. I evidently am an unusual case. ... Therefore he spent a Hugh amount of time educating me. He even gave me literature to further explain my condition and how to follow up. This is something you rarely get from your doctors. So I am more than please with my doctor and his staff.read more
Roger Arguello
Roger Arguello
03:05 29 Jan 21
Always courteous, professional. The staff is very friendly and always work with you to find the best appointment time.... The care team has been great. Always taking the time to listen to your concerns and to find the best treatment.read more
Margaret Rowland
Margaret Rowland
01:12 27 Jan 21
I have been a patient at Lone Star Neurology for several years. Now both my adult daughters also are patients there. I... love Jodie. She is always so prompt whether it is a teleamed call are a visit in the office. She takes the time to explain everything to me and answers all my questions. I am so blessed to have Jodie as my doctor.read more
Susan Miller
Susan Miller
03:01 13 Jan 21
My husband had an accident 5 years ago and Lone Star Neurology has been such a blessing to us with my husbands care.... Jodie Moore is his provider and she is amazing! Jodie is very knowledgeable, caring, and thorough. She takes her time with you, making sure your needs are met and she is happy to answer any questions you may have. Lone Star Neurology’s patients are very lucky to have Jodie providing their care. Thank you Lone Star Neurology and especially Jodie for everything you have done for us. Jodie, you are the best!read more
Windalyn C
Windalyn C
01:32 09 Jan 21
Jodie is wonderful. She is very caring and knowledgeable. I have been to over a dozen neurologists, and none were able... to help me as much as they have here. Thanks!read more
Katie Kordel
Katie Kordel
00:40 09 Jan 21
Jodi Moore, nurse practitioner, is amazing. I have suffered from frequent, debilitating headaches for almost 20 years.... She has provided the best proactive and responsive care I have ever received. My quality of life has been greatly improved by her caring approach and tenacity in finding solutions.read more
Ellie Natsis
Ellie Natsis
15:41 07 Jan 21
I have had the best experience at this neurologist's office! For over a year I have been receiving iv treatments here... each month and my nurse, Bobbie is beyond wonderful!! She's so attentive, knowledgeable, caring, and detail oriented. She makes an otherwise uncomfortable experience much more pleasant and definitely puts me at ease! She also helps me with my insurance,ordering this specialty medication and dealing with the ordering process which is no easy feat.Needless to say, she goes above a beyond in every way and I'm so grateful to this office and to Bobbie for all they do for me!read more
Matt Morris
Matt Morris
15:39 07 Jan 21
Let me start by saying that I have been coming here for years. Due to my autoimmune disease, I am in this office... once every three weeks for multiple hours at a time. The office is very clean and the staff very friendly. My only complaint would be there communication via phone. They aren't the best at responding if you leave a voicemail and expect a call back. I understand that this is prob just due to the sheer number of alls they receive daily. What I can say I like the best about the office are the people. Bobby who handles my infusions is great. I never have any issues with her setting up my infusions. She is very quick to reply to messages sent via text and if she were to leave then my whole opinion of the office may change. I also enjoy people like Matt, Lauren, and Jodi. I appreciate all that they do for me and without this team I'm not sure I would be as happy as I am to visit the office as frequently as I have to. Please ensure that these folks are recognized as they are what makes my visit to this office so tolerable :).read more
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