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Recovering From Encephalitis – What to Know?

Sandeep Dhanyamraju MD
Medically reviewed by Sandeep Dhanyamraju
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Sandeep Dhanyamraju MD
Medically reviewed by Sandeep Dhanyamraju

After treatment for encephalitis, you should be prepared because recovering can be long and difficult. Encephalitis affects the brain, so neurons (nerve cells in the brain) are affected. People with encephalitis experience effects similar to those of strokes, head injuries, and other brain diseases. These are usually associated with cognitive and speech impairment.

All these encephalitis long-term prognosis impacts should not be underestimated on a person’s life and social relationships. It is, therefore, important to be sensitive to a loved one who has had encephalitis. Returning to everyday life, work, or study after encephalitis can be difficult for many. In children, the effects may not appear immediately. Still, as the child matures and develops, it is significant to follow up with the doctor and be aware of any changes in the child’s behavior. You should pay particular attention to any cognitive impairment and rapid fatigue.

How Long Does Encephalitis Recovery Take?

Encephalitis can cause short-term after effects and those that will accompany you for the rest of your life. On average, in the mild form, the body recovers in 1-2 months, in the moderate form in 3-4 months, and in the severe condition in several years. People who have survived the dangerous disease receive special treatment. As a result, the effects of encephalitis become less pronounced or disappear altogether.  

How long does encephalitis recovery take

As with treatment, autoimmune encephalitis recovery depends mainly on the specific clinical case, the form of encephalitis, and the after-effects of the disease. However, the autoimmune encephalitis life expectancy after encephalitis, in general, ranges from 60 to 90 years in different countries. It is not only important to create an environment that is conducive to the patient’s natural recovery. Some areas of recovery need to be corrected and stimulated so that the person can return to their previous life as quickly and comfortably as possible. 

What Are the Key Factors for Quality Recovering From Encephalitis?

Creating an environment for a natural recovery process is vital for any type of encephalitis.  In most cases, people with relatively light diseases recover for several weeks without any complications in the long term. In addition to a supportive environment and surroundings, the person needs help from rehabilitation specialists as the illness affects the cognitive, behavioral, social, emotional, and medical aspects. 

The recovery process after encephalitis typically involves a neurologist, psychologist, speech therapist, occupational therapist, and other therapists. Their joint efforts aim to restore body functions or compensate for them with possible methods. It is also important to support the patient and their family in all aspects.

What are the key factors for quality recovering from encephalitis

In the process of autoimmune encephalitis recovery, it is important to consider psychological and universal care:

  • try to regain cognitive skills;
  • work with motivation and emotional state;
  • develop physical and mental stamina;
  • improve quality of life;
  • proper daily routine;
  • develop social skills.

You can discuss with your doctor the rehabilitation program and the profile of specialists to be involved. A neurologist, psychologist and neuropsychologist, speech therapist, physiotherapist, and occupational therapist usually help recover after encephalitis. Speech and swallowing disorders require the assistance of a speech therapist. For speech disorders, this includes exercises aimed at restoring phonemic hearing, auditory-verbal memory, articulation exercises, massage, etc. And for swallowing disorders, this includes advice on feeding, the consistency of food, and various techniques to stimulate the pharynx.

Resting and Pacing

Encephalitis has many after effects. It makes the body weak and exhausts the person physically and mentally. You have to follow the proper routine to get your life back after encephalitis.

When recovering from encephalitis, it is essential to remain in bed, as the disease puts an increased strain on the nervous, cardiovascular, immune, and other systems of the body. It is necessary to observe a comfortable routine for recovery, add some activity to daily life, drink plenty of fluids, and not forget about rest.

Good Nutrition

Diet plays a significant role in everyday life. You should know that a healthy diet strengthens the immune system and gives you the strength to fight disease and infection. Encephalitis dramatically affects a person’s immune and mental systems, so you should concentrate on rebuilding your immune system by eating as much healthy food as possible. The first thing to remember is that nutrition and drinking habits are vital to recovering from encephalitis. Try to consume more:

  • Fruit and vegetables without any heavy fibers;
  • Dairy products (kefir, cheese, sourdough), butter, and sour cream (not very fatty); 
  • Small portion of crumble oatmeal;
  • Low-fat meat and fish (boiled or steamed only). 

Adequate Services

It’s significant to give people the correct and current information about the disease and its effects, recovery, and autoimmune encephalitis life expectancy. Sometimes it is better to provide more details to relatives so as not to traumatize the patient’s psyche. To do this, you can use reliable and trusted online resources, such as the Encephalitis Society. You can also talk to the treating physicians; sometimes, it is better to consult several professionals at once. People should be sure to be informed about encephalitis long-term prognoses so that they are prepared for the accompanying symptoms, such as:

  • developing intellectual disorders;
  • changes in mood and behavior;
  • rapid fatigue;
  • and apathy.

Correctional psychotherapy and social adaptation are necessary to follow at home, also. This should be taken care of by the relatives of the patient. The sources mentioned above should be consulted for competent help.

Why choose Lone Star Neurology? 

Whay choose LoneStar Neurology

Programs of autoimmune encephalitis recovery at Lone Star Neurology are characterized by their flexibility and variability and by the professionalism of the specialists who develop and supervise them. For these reasons, highly qualified rehabilitation therapists at Lone Star Neurology perform rehabilitation after encephalitis treatment. Our specialists develop rehabilitation programs individually. In the case of encephalitis, this approach allows:

  • cognitive;
  • behavioral;
  • social;
  • physical;
  • and emotional skills.

In some cases, the patient learns to live again – to walk, read, write, eat, and talk. For each patient, the objectives are individual and depend on the severity of the disease. Lone Star  Neurology program is successfully planned and implemented to regain walking and complex actions for some patients. For people with severe emotional disturbances, the focus is on restoring memory and the ability to navigate one’s own home. Every patient can get the needed help in the best way. We are proud of our improved patients outcomes.

FAQs

  • How long does it take to recover from encephalitis fully?

The recovery period usually takes from 2 months to several years. The speed and quality of recovery depend on the person’s immunity, the help they receive, the professionals who work with them, and, of course, their attitude.

  • Can only humans catch encephalitis?

No, for example, tick-borne encephalitis infections are spread by iodide ticks. And encephalitis in general also affects animals – rodents, livestock, monkeys, and some birds.

  • Does encephalitis cause permanent brain damage?

The absence of medical treatment leads to a progressive deterioration to complete personal degradation. But if you help the person in time, you can avoid  encephalitis with minimal after effects

  • Does encephalitis shorten your life?

Yes, diseases, in general, shorten a person’s life. Encephalitis also has a significant impact on autoimmune encephalitis life expectancy. It is especially true of conditions related to the human psyche. It is due to the wear and tears on the life span of the organs.

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4.8 based on 12 reviews
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Edward Medina
Edward Medina
15:34 30 Jun 22
Just such an amazing staff that makes you feel like part of their family. I’ve been going there for over 5 years now... and each visit I get the very best care and treatments that I have ever received in the 20+ years that I’ve been dealing with severe debilitating migraines. Since i started seeing them the number of my migraines has dropped from 15-20 a month to 2-3 every 3 month. I highly recommend them …they will change your life!read more
Daneisha Johnson
Daneisha Johnson
22:20 19 May 22
Dr. Askari was very kind and explained everything so I could understand. The other staff were nice as well. I would... have gave 5 stars but I was a little taken aback when I checked in and had to pay 600.00 upfront. I think that should have been discussed in a appointment confirmation call or email just so I could have been prepared.read more
Jean Cooper
Jean Cooper
16:54 29 Apr 22
I love the office staff they are friendly and very helpful. Dr. JODIE is very caring and understanding to your needs... and wants to help you. I will go back. would recommend Dr. Dr. Jodie to other Patients in a heart beat. The team works well together.read more
Linda M
Linda M
19:40 02 Apr 22
I was obviously stressed, needing to see a neurologist. The staff was so patient and Dr. Ansari was so kind. At one... point he told me to relax, we have time, when I was relaying my history of my condition. That helped ease my stress. I have seen 3 other neurologists and he was the only one who performed any assessment tests on my cognitive and physical skills. At one point I couldn't complete two assessments and got upset and cried. I was told, it's OK. That's why you're here. I was truly impressed, and super pleased with the whole experience!read more
Leslie Durham
Leslie Durham
15:05 01 Apr 22
I've been coming here for about 5 years. The staff are ALWAYS friendly and knowledgeable. The Doctors are the absolute... best!! Jodie Moore is always in such a great mood which is a plus when you are already stressed. Highly recommendedread more
Monica Del Bosque
Monica Del Bosque
14:13 25 Mar 22
Since my first post my thoughts have changed here. It's unfortunate. My doctor and PA were great, but the office staff... is horrible. They never call you back when they say they will, they misinform you, they cause you too much stress wondering what's going on, they don't keep you posted. They never answer the phone. At this point I've left four messages in the last week, and I have sent three messages. Twice from their portal and one direct email. No response. My appointment is on Monday morning at 8:30am, no confirmation on my insurance and what's going on. What the heck is going on, this is ridiculous!I've given up... the stress her office staff has put me through is just not worth it. You can do so much better, please clean house, either change out your office staff, or find a way for them to be more efficient please. You have to do something. This is not how you want to run your practice. It leaves a very bad impression on your business.read more
Ron Buckholz
Ron Buckholz
23:32 23 Mar 22
I was actually pleasantly surprised with this visit! It took me a long time to get the appointment scheduled because no... one answers your phones EVER! After a month, I finally got in, and your staff was warm, friendly, and I was totally impressed! I feel like you will take care of my needs!read more
Steve Nabavi
Steve Nabavi
16:28 16 Mar 22
It was a nice visit. Happy staff doing all they can do to comfort the patients in a very calming environment. You ask... me they are earned a big gold star on the fridge. My only complaint they didn't give me any cookies.read more
Katie Lewis
Katie Lewis
16:10 10 Feb 22
Had very positive appointments with Jodie and Dr. Sheth for my migraine care. Jodie was so fast with the injections and... has so much valuable info. I started to feel light headed during checkout and the staff was SO helpful—giving me a chair, water, and taking me into a private room until I felt better. Highly recommend this practice for migraine patients, they know what they’re doing!!read more
Joshua Martinez
Joshua Martinez
16:02 10 Dec 21
I was scheduled to be checked and just want to say that the staff was fantastic. They were kind and helpful. I was... asked many questions related to what was going on and not once did I feel as though I was being brushed off. The front desk staff was especially great in assisting me. I'm scheduled to go back for a mri and am glad that I'll be going there.read more
Isabel Ivy
Isabel Ivy
21:42 03 Nov 21
I had such a good experience with Lone Star Neurology, Brent my MRI Tech was so awesome and made sure I was very... comfortable during the appointment. He gave me ear plugs, a pillow, leg support and blanket, easiest MRI ever lol 🤣 My 72 hour EEG nurse Amanda was also so awesome. She made sure I was take care of over the 3 days and took her time with the electrodes to make sure it was comfortable for me! Paige was also a huge help in answering all my questions when it came to my test results, and letting me know her honest opinions about how I should go forth with my treatment.read more
Leslie Luce
Leslie Luce
17:37 20 Oct 21
The professionalism and want to help attitude of this office was present from the moment I contacted them. The follow... up and follow through as well as their willingness to find a way to schedule my dad was above and beyond. We visited two offices in the same day with the same experience. I am appreciative of this—we spend a lot of time with doctors and this was top notch start to finish.read more
robert Parker
robert Parker
16:38 16 Apr 21
I love going to this office. The staff is friendly and helpful. The doctor is great. I am getting the best... neurological tests and treatment I have ever had. The only reason I did not give them a 5 star rating is because it is impossible to reach a live person at the office to reschedule appointments. Every time I have tried to get through to the office it says all people are busy and I am sent to a voicemail. If they could get their phone answering fixed, I would give them a strong 5 stars.read more
MaryAnn Hornbaker
MaryAnn Hornbaker
00:26 25 Feb 21
Dr. Harney is an excellent Dr. I found him friendly , personable and thorough. I evidently am an unusual case. ... Therefore he spent a Hugh amount of time educating me. He even gave me literature to further explain my condition and how to follow up. This is something you rarely get from your doctors. So I am more than please with my doctor and his staff.read more
Roger Arguello
Roger Arguello
03:05 29 Jan 21
Always courteous, professional. The staff is very friendly and always work with you to find the best appointment time.... The care team has been great. Always taking the time to listen to your concerns and to find the best treatment.read more
Margaret Rowland
Margaret Rowland
01:12 27 Jan 21
I have been a patient at Lone Star Neurology for several years. Now both my adult daughters also are patients there. I... love Jodie. She is always so prompt whether it is a teleamed call are a visit in the office. She takes the time to explain everything to me and answers all my questions. I am so blessed to have Jodie as my doctor.read more
Susan Miller
Susan Miller
03:01 13 Jan 21
My husband had an accident 5 years ago and Lone Star Neurology has been such a blessing to us with my husbands care.... Jodie Moore is his provider and she is amazing! Jodie is very knowledgeable, caring, and thorough. She takes her time with you, making sure your needs are met and she is happy to answer any questions you may have. Lone Star Neurology’s patients are very lucky to have Jodie providing their care. Thank you Lone Star Neurology and especially Jodie for everything you have done for us. Jodie, you are the best!read more
Windalyn C
Windalyn C
01:32 09 Jan 21
Jodie is wonderful. She is very caring and knowledgeable. I have been to over a dozen neurologists, and none were able... to help me as much as they have here. Thanks!read more
Katie Kordel
Katie Kordel
00:40 09 Jan 21
Jodi Moore, nurse practitioner, is amazing. I have suffered from frequent, debilitating headaches for almost 20 years.... She has provided the best proactive and responsive care I have ever received. My quality of life has been greatly improved by her caring approach and tenacity in finding solutions.read more
Ellie Natsis
Ellie Natsis
15:41 07 Jan 21
I have had the best experience at this neurologist's office! For over a year I have been receiving iv treatments here... each month and my nurse, Bobbie is beyond wonderful!! She's so attentive, knowledgeable, caring, and detail oriented. She makes an otherwise uncomfortable experience much more pleasant and definitely puts me at ease! She also helps me with my insurance,ordering this specialty medication and dealing with the ordering process which is no easy feat.Needless to say, she goes above a beyond in every way and I'm so grateful to this office and to Bobbie for all they do for me!read more
Matt Morris
Matt Morris
15:39 07 Jan 21
Let me start by saying that I have been coming here for years. Due to my autoimmune disease, I am in this office... once every three weeks for multiple hours at a time. The office is very clean and the staff very friendly. My only complaint would be there communication via phone. They aren't the best at responding if you leave a voicemail and expect a call back. I understand that this is prob just due to the sheer number of alls they receive daily. What I can say I like the best about the office are the people. Bobby who handles my infusions is great. I never have any issues with her setting up my infusions. She is very quick to reply to messages sent via text and if she were to leave then my whole opinion of the office may change. I also enjoy people like Matt, Lauren, and Jodi. I appreciate all that they do for me and without this team I'm not sure I would be as happy as I am to visit the office as frequently as I have to. Please ensure that these folks are recognized as they are what makes my visit to this office so tolerable :).read more
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  1. 28/07/2023

    Very informative. I was very poorly last year and was rushed into hospital. The doctors didn’t seem to know what was wrong with me so didn’t give me any treatment. It was the worst experience I have ever lived through. My eldest daughter was studying psychology at the time so after approximately a week she suggested I could have encephalitis and demanded that they start giving me anti viral medication and antibiotics. They drip fed me this and continued running tests on me. After several horrible weeks in hospital I finally felt well enough to sign myself out of hospital. I was still very confused for several months but because I signed myself out of hospital it was never concluded that I had this illness. After reading your article I am convinced my daughter is right. It’s been over a year now and I still get really bad flashbacks. I’ve got a constant headache. I suffer from memory loss …. The list goes on and on .

    • 29/02/2024

      Dear Elizabeth, I am so sorry you had this really horrible experience. I have a similar story; I contracted a virus while on a family holiday when I was fifteen and as neither of my parents were in a good mental state I was not brought to hospital when my symptoms worsened, to the point of having breathing difficulties, convulsions/tremors, confusion and disorientation, extreme weakness and altered states of consciousness. I didn’t even recognise my own mother and at times didn’t know where I was. Not having medical treatment and a definitive diagnosis has made living with the long-term effects of this encephalitis extremely difficult. I have had to join the dots myself. It’s not an easy road. It completely changes your neurophysiology, and that can be true for so many – even those who had a timely diagnosis and appropriate treatment. I wish you so much love and healing, wherever you are. Christine x

  2. 24/08/2023

    6yrs on after encephalitis
    I still struggle on day n night with the its changed me as a person that I once was is no longer .I can find the words to say how much it has changed my life
    It’s a hard place to exist in this life
    Whether to call for help that’s not there .

  3. 06/10/2023

    Have you looked up MIS-A? I too had a serious “mystery” illness. Now convinced I had MIS-A due to symptoms and extensive lab results.

  4. 12/10/2023

    I am reviewing everything I can on this type of brain injury. Your information was exceptional. My daughter was diagnosed with encephalitis in June. It has been a long hard road. She now nolonger wants to eat and drinks constantly..her memory is terrible and it scares and frustrates her. She is 50 years old
    And she She is so fatigued is hard to get her motivated. The doctors they sent her to were not helpful and her nuro advised she would never get any better
    Being a mom my heart is just overwhelmed for her. We need direction and help so she doesn’t regress. Gg

  5. 18/10/2023

    I’m recovering from Japanese Encephalitis and it’s a tough journey. I was fortunate to be diagnosed and admitted to Brain Injury Unit where I was released five months later and went home to eventually live in my home independently.
    I still have on going conditions that cause me anxiety, fatigue and have lost my ability/ confidence to drive again. Those around me encourage me to keep trying however I’m doubtful I’ll succeed.
    The changes to my life are significant and I appear to manage well however it’s a tough journey . I’m so fortunate for my family and our health system for how far I’ve recovered to date.

  6. 07/12/2023

    Very good information. 8 years ago my 11 year old daughter was very sick for 2 weeks with a sore throat, high temperature and flu like symptoms. Immediately after the illness, like a light switch, she began demonstrating severe psychosis. Irrational phobias that led to panic attacks and blackouts, memory loss, catatonic seizures, involuntary movements, auditory and physical hallucinations, loss of control of regulating emotions like laughter or crying. After 6 months of fear and in and out of hospitals we finally found a child neurologist who saved her life by diagnosing her with autoimmune encephalitis and getting her an IVIG infusion which took her symptoms away immediately within 24 hours. For the first few years she needed an infusion about every 6 months as symptoms would slowly return but now she will go 1-2 years between infusions. She lives a completely normal life and we are forever grateful for her neurologist. It is a terrifying disease that more doctors needs to be educated on!

    • 21/01/2024

      Hi my 14 year old daughter is going through this now is they any advice please

      • 20/03/2024

        As long.as she got the medical attention she required she will be ok.If it’s autoimmune ask them to run a test for teratormas.These are little usually benign tumours
        These are sometimes the cause of the autoimmune response usually found in the ovaries.My daughter is at the end point of it and she was initially diagnosed with a mental illness

  7. 24/12/2023

    I understand that I was not”normal” for a number of weeks before I collapsed and was given the kiss of life. I understand I was rushed to hospital. I have no memory of the first few months but I was told that I swore all the time,something I don’t do normally. I was distraged from a hospital in Kilmarnock where the staff apart from 2 wonderful nurses spent time with me.
    I was home for about 5 days and readmitted. Fortunately I was transferred to a wonderful hospital in Irvine Ayrshire. The staff were wonderful.
    I had gone down to 6stone from 8.7st.
    I was distraged when I was 7 .7 stone.
    Since I have been home I have been treated very badly with neighbours.
    In my opinion people do not understand Encephalitis and my life is hell.

  8. 04/01/2024

    Hello! I simply would want to supply a large thumbs up with the excellent info you’ve here on this post. We are coming back to your blog site for much more soon.

  9. 04/01/2024

    I would also like to share my experience of being diagnosed with this horrible disease and hospitalized for almost two months. But, I would mostly like to share this because I believe this type of an experience can make us stronger and help us appreciate so many things in our life that we used to take for granted.
    It all started (as my husband recalls it , as I still do not have any memory of that) with a a huge memory loss and hallucinations. I was kept sending back home by doctors who couldn’t find anything… until one day I had an epileptic seizure right there at the emergency unit…That’s when they decided to hospitalize me.
    It took 10 days for the doctors to figure out that epilepsy was a result of autoimmune encephalitis. It’s been a year since then and I still have huge memory issues, but…. I’ve managed to regain my physical form. I go swimming every single day, walk a lot and it has helped me to fight the huge sense of fatigue I used to have….
    It’s still hard, but we should keep fighting for us and for our beloved ones. It’s been a hard journey which is not over yet, but I am calling you all to continue your fight to regain your life back, to regain your happiness…..

  10. 19/01/2024

    I just found out my granddaughter has this dear lord please help her she only 25hrlp her lease

  11. 06/03/2024

    My brother was diagnosed with autoimmune encephalitis three weeks ago, lots of drugs and infusions, his physical strength is coming a little but he still has hallucinations and memory lose
    He recognizes me more but still confused sometimes and it’s hard
    The doctors wants to discharge him, I don’t know if it’s a good idea, it’s frustrating

  12. 17/03/2024

    I would like to share my story . At the age of 3 3 months shy of my 4th. My dad told me I got really sick. We had just moved back to California LA County. For the next 4 days, he said I kept getting worse. Fever climbed to 106 degrees. My parents rushed me to the ER. I was transported to the now condemned Boyle Heights giant General Hospital. I was diagnosed within days my dad told me as I fell into a coma. The doctor said I had Viral Meningitis and encephalitis. They told my parents the could treat the encephalitis but there was no cure for viral Meningitis. I remember being in a crib at the hospital and I remember the crib bars being hot metal on fire. (Probably because of my high fever) I was there for a month. The doctors told my parents if I survive it was highly possible I could go blind, have hearing loss, become crippled or mentally challenged. Well I recovered, 100% NO effects!! My parents watched me like a hawk as a child. I don’t blame them now. But, I am 61 years old now. I rarely get sick. I think because my immune system was attacked so intensely as a child.i built up some kind of super immune system. I don’t know how else to put it. Also, my mom had all of our “new” neighbors and churches in Arcadia praying for me. That was the best medicine. My advise , if your doctors can’t diagnose you quick, like I was back in 1966. It’s time to change doctors. God bless

  13. 28/03/2024

    Had a coworker get this three months ago. He’s home for a few weeks now, but can’t remember the past year of his life. Doctors say he has at least a two-year recovery. The research says that nutrition and the pure will to live are the keys. The brain needs BDNP to repair which can be generated by Keytones, so like with epileptics, a ketogenic diet can be effective. A zero carbohydrate diet. The full spectrum of amino acids from fat and meat is critical.

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